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cheeryble

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Everything posted by cheeryble

  1. Hello, Sheryl I feel I should give some feedback to keep your knowledge base up-to-date. I have discovered the Dr. Roongroj is now not accepting new patients at the Medpark and Bumrungrad.. I have made an appointment at Bumrungrad with a Dr Orapon for 20th January as the first step, and I am considering a visit to the Chivacare Clinic in CM, firstly to check out muscle/skeletal issues like hammertoes on my right foot, and as the doc there is a neurologist he may have some input on my route to DBS. As I write, it is three hours since I took my dopamine at 9:30 and it has had, no noticeable affect. Yesterday, even taking a dose of Madopar and re-quip together did not work and the gym was a snail,s pace. IMG_1160.MOV
  2. That should be dear Cheryl!
  3. Yeah Cheryl. Thank you so much for this information which by chance has been confirmed by pharmacist friend, whose father has had long-term Parkinson’s and knows Dr Roongrod. I have made the clear decision in the last day or two to try for this operation and will crack on with the all speed. Wish me luck! It is nice to see you still doing the wonderful work you do. Merry Christmas to you and yours Cheeryble.w
  4. Hello Sheryl im in Chiang Mai, 74yo
  5. I have been diagnosed with Parkinson’s for six years. Obviously, I had some interest in deep brain stimulation, but I thought it was reserved for those who had had Parkinson’s much longer. Yesterday, a friend sent this serious of YouTube videos and the subject of the documentary who has her operation under the NHS. It turned out had Parkinson’s also for six years. And my symptoms are not the same as hers but I did have one of the surgeons saying a good reason for having DBS is if the medication’s are working very sporadically. I am switched off a lot of the time and when I take my meds, it can take more than two hours for them to start working. I do not shake much, but I shuffle when I’m off with steps of just a few inches. Food gets lodged in my throat. I have no sense of smell. I can’t type when I am even a little bit off. [hence why am dictating this? I’m sorry if it’s not too accurate] when I am off I can’t turn from one side to the other in bed in bed and an often cannot get out of bed. I can’t turn from one side to the other in bed in bed and an often cannot get out of bed. This will give some idea I write this. I merely to give some idea of the importance an operation could have. I have no insurance, so I would have to pay from my savings. He could anyone, notably, Cheryl, or anyone who has been through the same journey, put me in the right direction to have this done in Thailand.? is India a worthwhile option? Thanks in advance. Cheeryble
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