Honestly the last two years has been an absolute nightmare I hope nobody else goes through. I'm too exhausted to tell the whole story but my almost two-year od son has been in hospital almost his entire life as his stomach twisted @ 6 weeks, leaving him with only 10cm of bowel. He should be coming home in the next couple of months as his weight has to reach a certain limit before they let him out and he's just about there now.
Just been a nightmare dealing with giant rats, (some) uncaring doctors, going through the worst period of my life with zero privacy, living at hospital, showering in a cold bucket of water and sleeping on concrete, dealing with the stares and stupid comments and a baby who almost died twice. Despite his age he's been through maybe 15 or 20 surgeries and bounced around three hospitals. Some stuff is covered on insurance and the stuff that isn't has almost bankrupted us.
We were encouraged early on by the surgeon and nutritionist to take him home and keep him comfortable and let him die and just have another kid instead but that was never really an option for us and I'm never giving up on him, no matter how bad things get. I think I have PTSD from dealing with this nightmare. Thanks for reading my blog post.