Cystic Fibrosis tests

[bbi1]

Does anyone know where in the BKK area you can get a "Cystic Fibrosis sweat test" done or any other tests for ""Cystic Fibrosis"? I asked Samitevej & they said they don't do it, which is very surprising for a hospital that is meant to be one of the best ones.

Also, anyone know where to buy Licorice/Liquorice in the Sukhumvit area? I've gone to all the major supermarkets & can't seem to really find it. I've maybe seen one product in Foodland & one in Villa Supermarket that looks that it could be Licorice/Liquorice but don't know since it's in some foreign language & doesn't have any English. Or even Licorice/Liquorice root or whatever it is. Looking for it for it's health benefit to help get rid of the mucus buildup in the lungs.

[Sheryl]

CF is very rare in Thailand so I am not sure this is available. If it is, Siriraj would be the most likely place. http://www.siphhospital.com/

[bbi1]

CF is very rare in Thailand so I am not sure this is available. If it is, Siriraj would be the most likely place. http://www.siphhospital.com/

I would think there are some Thai people who have it even if it's rare. It's surprising that the so-called "great top end" hospitals like Samitivej & B&H Hospital have said they don't do the tests. Bumrungrad has said they do it but it's at a shockingly high 10k baht for the test only, not including any doctor fees. That was their quote. Will still enquire with others to see if they do it and at a more reasonable price.

[Sheryl]

Before doing this I suggest you or the patient be seen by a pulmonologist who trained in the west. It may well be possible to rule out CF on clinical grounds and identify another cause.

[sanukma]

Well you would want to do more than just a sweat test!!

When I was about one year old I had a bit of food intolerance. The doctor suggested CF so took a sweat test and I was diagnosed with CF all up until I was 16 years old. When they finally found out that I just have abnormally high salt content in my sweat.

So in other words I was misdiagnosed for 15 years and did in fact not have a thing.

During those 15 years I was in hospital for check ups every other month. I was always doing fine. I took digestion pills before every meal that I didn't need. I was up an hour before all the other kids in school to do all the <deleted> that people with CF has to do to clear their lungs of slimy goo. However never much came up. And still it wasn't before I got a new doctor at age 16 that he started to questioning my diagnosis and found out I didn't have CF. The confirming test was a sperm test. Males with CF have no sperm cells in their semen (they can still have kids).

I was always on summer camps with other kids with CF and there is a high focus on physical activity and sports on these camps.

I was the champion in everything. They had no chance what ever we did. Because I was the one healthy kid against all the sick :-)

If you think you have CF, then find an expert on it and have it thoroughly checked. Not just a simple sweat test.