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Posted

I am a Chinese citizen, HIV transmission in China is more serious. As China's CDC identified only antibody positive gold standard, without considering the symptoms and long-term immune monitoring results. Because of the limitations of reagents even if a lot of people infected with HIV but the variation of the antibody showed negative. Even the well-known domestic experts issued by the hospital infection of the HIV variant of that, but the CDC is still not recognized, so it will not be the national medical support. China's HIV treatment in the system, the national CDC has played a major role. Antibody positive but only show the country can be free medical support, and infected with the HIV antibody negative variation does not in patients with free medical support, even at their own expense, the medicines are not qualified to give. Some people are faced with waiting for death threats. I belong to them is also a member of the country at their own expense to medicines is not the way. Thailand's HIV treatment for the condition I was very appreciated, I can through what channels to your country for medical the possibility of stability under the condition that you buy prescription drugs back to their treatment because my partner may also be infected. I hope that in her CD4 dropped to a certain degree of time to give medication. I am the most pressing desire in your country is widely available and appropriate antiviral drugs, and based on their return home under the guidance of the physician-assisted therapy. How should such a way to build.

Posted

Who can help me on a professional HIV doctor? I can do the right answer Although I know of a hidden infection is not casually take medicine, but through long-term monitoring of CD4 and a trial treatment. In our country not isolated the virus can be detected before and can only use this method. I hope that the specific method can be understood in this regard Thai friends to help me to answer.

Posted

Through dialogue, perhaps you my words there will be uncertainty, but if someone can be introduced, Thailand in this regard the doctor, when necessary, I will take my annual inspection, and one of the symptoms, or even a laboratory T cells to the lymph encountered virus infection inference. To Thailand, because I believe in science, is the A's, and drug resistance is not high on the drug-treatment must be in China lack of government support, Treatment of the drug cost is very high, if Thailand's anti-viral drugs if the price is acceptable to me. And can be maintained.

Hope to have a friend in this regard can be given the support and answers,

Posted

I do hope that for you, that one of the members here is knowledgeable on this subject. You state that aids is the problem, now there is aids on various levels, besides that , I don't think that it is an everyday subject to a lot of members here.

Why don't you try contacting Thai hospitals and ask them to put you in touch with the resident specialist in this area. But I very much doubt they will just prescribe you something without running test's and ...someone paying for it ! I am sorry, but that is worlds reality.

If you want Thai doctors to prescribe you a drug, or drugs, than you will have to come over to Thailand. Or is it that you already know what it is that you need? In that case you still need someone to prescribe it as far as i know, and maybe you can order it.

Sorry I cannot be of more help on this subject.

Some friendly advice on your writing: Please keep your questions short and to the point, too long will put people off because they don't understand what you are talking about.

Good luck to you.

Posted (edited)

Thank upstairs friend.

In China, I belong to the urban households have some assets, in the absence of antiviral drugs circumstances, the chance of infection is a huge cost. If antiviral drugs, then it will be in my expenditures within affordable.

Unfortunately, many such cases in China. I belong to China 80 years after the generation and culture of high quality, undergraduate. And I would like to have a similar graduate students and other friends.

While we in the associated countries, but the emphasis is not ideal, this situation may have a few years later by the country will deteriorate seriously, but we must now think of ways to extend their lives,

the CDC is invalid because of their exclusion, first I His wife, my parents are in a total of four people are infected. Hope to have a friend introduced me to a doctor? HIV, I would like to sincerely and his communication on.

Edited by HELP123
Posted

If what you are asking for is a recommendation for a doctor in Thailand who can treat AIDS, see this link which contains several first hand recommendations:

http://www.thaivisa.com/forum/AIDS-treatnm...kok-t48358.html

The hospitals mentioned are all able to perfrom Viral Load and other tests and the physicians mentioned are first class. You will, of course, have to come to Thailand yourself. So will your parttner, the doctors are not going to give you medication to take back for a patient they have not seen.

But I think they will give you a reasonable supply of medication to take back to China once they have examined you and run the necessary tests. Ask specifically about the "GPO" brand as it is less expensive.

Good luck.

Posted

I am a Chinese, the spread of HIV in China very serious. China's Curriculum Development decided at the meeting: only the standard-positive, without considering the symptoms and long-term immune monitoring results.

Because of the limitations of the standard, but the variation of the antibody were negative but not recognized, so it will not become a national medical support.

China's HIV treatment system, the state played a major role in the NPC. - Positive, only countries can receive free medical support, but infected with the HIV-negative changes in patients with free medical care is not the support, even in their own expense, Chinese medicine is not qualified to.

Some people are faced with waiting for death threats. He is not all Member States in their respective costs, all such drugs. Thailand's HIV treatment conditions, I feel very good, I can channels through which the long-term, stable from your purchase of such drugs

Even some well-known domestic and foreign experts have said the hospital infected with the HIV virus variant

Posted

efavirenz 3tc azt the price of this portfolio is how much money a year

Kaletra tdf 3tc the price of this portfolio is how much money a year

The best price cheap ah, I have a family of four may use

I will own a specific time you went to Thailand to see the local doctors and prove that they were infected

Posted

Op does use the type of English that might make someone suspect that he is a fluent English speaker impersonating a Chinaman.

But it does raise an important issue worthy of discussion: namely if someone were to find themselves short of funds in Thailand, where would free or low cost drug AIDS drugs be obtained ?

I think this has in part been answered already, but any further answers might be very useful in the future.

Posted
firstly find someone who can type english properly so we can understand what you are asking, i understand english might not be your first language but if you want some educated responses we need to know what the hel_l you are talking about.

another high and mighty native english speaker :o

no mate just being honest, if u speak gibberish feel free to translate

I am a Chinese, my English is not good, I mainly use on-line translation, the Chinese will be converted into English, I was not the smugglers, because the treatment of HIV in China is free of charge, so be sure the country is not infected Need to pay any money.

Because we have some people infected with a virus, the Pasteur laboratory in Shanghai, we have done a blood test showed that the T cells are suffering from the destruction of the virus, one of the patients 2 years, the antibody-negative, but the symptoms are classic The symptoms of HIV, the hospital recognized variant HIV, but the CDC does not recognize, we are facing life-threatening.

As a result of this disease in the course relatively slow, large-scale outbreak will not be a short period of time, but no such investigation of the virus would be more formidable threat in the next few years, there will be outbreaks. And we look like normal people, but Physical symptoms and the indicators are alarming and infection is similar.

I was overcast because of the symptoms of antibodies were excluded countries, because of this, I relaxed vigilance, with my wife.

Some of our people because of symptoms in nine months time, it is obvious, so take a 3 TC, CD4 increased from 200 to 400.

He did not HBV, but he infected the virus on 3 TC is reflected.

I now can do is to Thailand to buy two or four people were in, antiviral drugs, but a future danger, I will try to guide their own doctors to take medicine, the virus is difficult to check, so Deyong Treatment of HIV2 way of monitoring the results.

My goal now is: latent five years, the medicines you to uphold the five-year, nine years after the country should seriously

Posted

1. Have the antibody negative persons you refer to had their viral load measured?

2. Have you discussed this problem with the WHO and UNAIDs country offices?

Posted
Op does use the type of English that might make someone suspect that he is a fluent English speaker impersonating a Chinaman.

But it does raise an important issue worthy of discussion: namely if someone were to find themselves short of funds in Thailand, where would free or low cost drug AIDS drugs be obtained ?

I think this has in part been answered already, but any further answers might be very useful in the future.

I'm a bit dubious re the impersonation bit, I think it would be both more sterotypical and a bit more coherent if that were the case. Use of a computer translation program on the other hand would indeed produce pretty much what this sounds like.

There are of course many other odd aspects to the post...

As for as to the question of where someone might obtain low cost or free AIDs tx in LOS, the answer is simple: for AIDs or anything else, a non-citizen is not going to be able to obtain free or subsidized treatment in Thailand, unless they have insurance or are covered by the Thai Social Secuirty system through employment etc. Otherwise, it is fee for service. Locally made generic drugs -- if these are appropriate -- will be much less expensive than equivalents would be back home, and costs of treatment and tests will be less than full-pay back home, especially if sought in either a government hospital or one of the not-for-profits. But costs there will still be. If drugs are required which are not locally produced, the drug cost may even exceed what it would have been back home.

For someone who still can't afford that, the answer is to return home and avail of whatever type of medical assistance programs are available there.

No matter how long you may have lived here or how much you may regard it as home, the Thai Government does not have an obligation to assist you as a non-0citizen (Note: I am not sure of the situation for those with permanent residency..does anyone know?) . Conversely, no matter how long you've been away, the government that issued the passport you carry still does. (Some of course do better by that obkigation than others!)

No one should be here without at least hospitalization insurance or enough assets to be essentially self-insured. Anyone who is here under such sircumstances who develops a serious condition should return home ASAP while still able to travel independently. I have dealt witgh horrific situations resulting from expats not doing this...and becoming a huge burden to their nearest relations back home and Thai friends/family here.

Posted (edited)
efavirenz 3tc azt the price of this portfolio is how much money a year

Kaletra tdf 3tc the price of this portfolio is how much money a year

The best price cheap ah, I have a family of four may use

I will own a specific time you went to Thailand to see the local doctors and prove that they were infected

Please answer the above two issues all use Locally made generic drugs

Edited by HELP123
Posted

Basically I think OP says he's been testing negative on Hiv tests

but has another hiv strain that doesnt respond to the tests.(?)

Only more tests can give an answer, I think for the moment this would be

a until now unknown strain which I doubt wd not have been reported before.

So you have people testing negative wanting to start retroviral therapy.

Best wd be to come over to Bangkok, test again, but if you test negative/ no viral load/ ok cd4 cells,

no hiv specialist here will prescribe meds. While meds here are fairly inexpensive

you still need prescriptions. Generally therapy costs 5000 thb/month (case: Bangkok General hospital),

might be cheaper depending on the hospital you go to.

Posted

Upstairs is the friend you if I said that HIV infection is a strain of all the experiments are to overcast then I even went to Thailand will not drugs?

Can only wait for the arrival of death »here because we Patients of all domestic advanced tests have done is overcast. Finally, there is a doctor by observing CD4, symptoms, and indeed in the cell received the diagnosis of the attacks. If the medicines in Thailand, my home, four people are able to afford the .

Please know I recommend a friend to the hospital and a reasonable way to medicines

At the same time, I hope you will respond, there is a certain strain if necessary, I will be patient with the same diagnosis and medical treatment to Thailand.

Posted

HELP123 - it is very difficult to understand what you are saying. Please try to find someone who can translate for you - because the computer translation is not good.

Posted

I am helpless but to their families, I should strive to have a voice because I want to fight for

HIV infection should correctly face terrible fact that HIV is not necessarily a scientific approach to deal with it

If I have the ability to pay for drugs and medicines in the country can not buy a result will face the death is a terrible thing

Posted
I am helpless but to their families, I should strive to have a voice because I want to fight for

HIV infection should correctly face terrible fact that HIV is not necessarily a scientific approach to deal with it

If I have the ability to pay for drugs and medicines in the country can not buy a result will face the death is a terrible thing

I am helpless but to my families, I should strive to have a voice because I want to fight for

HIV infection should correctly face terrible fact that HIV is not necessarily a scientific approach to deal with it

If I have the ability to pay for drugs and medicines in my country can not buy a result will face the death is a terrible thing

Posted

As we infected with the variant of HIV, the existing reagents and we can not check out the antibodies and virus .

in Thailand's system of comprehensive HIV prevention and treatment,Whether the HIV infection is diagnosed by the long-term monitoring, symptoms and T-cell culture experiments, the three aid . and the patient's immune crisis of trying to use antiviral drugs.

In China, the only available drugs are provided by CDC , a large hospital in the country ,although more than one of experts diagnose that one is infected with the HIV virus variant, but the state CDC stubbornly denied it. Patients can only rely on traditional Chinese medicine that the hospital's experts offer t to delay the illness, and can not be got antiviral drugs.

Because this kind of situation is quite special.In Thailand, if there is a similar thing, the HIV infection can determine through these support measures?

Posted

For other Readers - it has been verified that the OP is in fact posting from China. Patience therefore requested with the language difficulties.

-----------------------------------------------------------------------------------------------------

Dear "Help123",

PLEASE HAVE THIS REPLY READ BY AN ENGLISH SPEAKER, IT WILL NOT BE UNDERSTANDABLE WITH A TRANSLATION PROGRAM.

If I understand you correctly you are talking about a problem of persons with HIV who cannot obtain treatment because they are antibody negative, is that right?

What I need to understand is whether or not these people have been tested for the presence of the virus itself (viral load, RNA test)??

If not, this testing can definitely be done in Thailand and treatment would be provided accordingly once the virus is demonstrated in the blood, no matter what the antibody test shows.

If you are saying that these people also fail to show any sign of the virus in their blood, despite RNA testing, then to the best of my knowledge, this means they do not have HIV and therefore would not benefit from HAART. They either have some other underlying disease OR they may have a rare condition known as "Idiopathic CD4 Leukocytopenia" (ICL).

Unfortunately the cause(s) and best treatment of ICL are still under investigation. It is possible that there are multiple causes. On the positive side, the incidence of opportunistic infection seems to be much less than in low CD4 counts due to HIV and the overall prognosis is better. It will not respond to the drugs used to treat AIDs because those drugs work by preventing reoplication of the HIV virus, which by definition people with ICL do not have.

IF it has been thoroughly documented that there is no HIV present in the blood (through viral load assays, including PCR test to rule out even small amounts of virus) then these patients need to be evaluated by a hematologist or immunologist for other possible causes. This too can be done in Thailand if it is not possible for you to do in China.

IF presence of HIV in the blood has not been ruled out by the tests described above and if you cannot get that done in China then yes, you should consider coming to Thailand.

IF presence of HIV has been ruled out by all the tests decscribed and other causes of low CD4 have also been adequately rules out by extensive testing by a qualified specicialist in immunology -- in other words, if there is a clear diagnosis of ICL -- THEN:

1) Try to relax...the risk of death is NOT the same as for AIDs, most patients survive and lead pretty normal lives.

2) Standard treatment is medication to prevent opportunistic infections and regular monitoring of the CD4 count.

3)Experimental treatment includes use of various types of interferon. I do not know if anyone is doing this in Thailand. Before I spend a lot of time trying to find out, I would like you to first confirm if this is the problem.

Posted

a large hospital in the country ,although more than one of experts diagnose that one is infected with the HIV virus variant

it is not ICL -- THEN:

it is the HIV virus variant.

1. it has the infection, usually will infect their companions

2. usually will be in has the acute symptom with the prostitute high-risk latter 1 month in

3. to surpass ten thousand above person infections

Posted

I am not exactly sure what you mean by "HIV variant", there are many variants of HIV known, is this a new one? I do know that there is a lot of drug-resistant HIV strains in China but it sounds like what you are describing may be different.

If HIV (any variant) has been found in your blood, then you should be able to obtain treatment in Thailand.

I would suggest Dr. Asda at Bumrungrad Hospital, you can make appointment by internet and the hospital can provide Chinese translator. The hospital has offices in Macau and Hong Kong which can help explain and arrange things for you:

Hong Kong:

Janet Li

AFH Health Care Service Limited

Address : 22/F, Euro Trade Centre,

21-23 Des Voeux Road Central,

Hong Kong

Tel : +(852) 3606 9606

Fax : +(852) 2545-3881

E-mail : bihk@afh.

macau:

Dr. Sharon Wong

Metro clinic

Address : Av. da Praia Grande 405,

China Law Building,14th Floor

Macau

Tel/Faxl : +853 (355) 522

Email : [email protected]

It may be easier for you to email or call them as they can explain the details in Chinese an I think they can also arrange appointment for you. Anyway appointment is not hard because Dr. Asda works every day.

Bring all your test results with you to save money on repeat tests.

Name: Dr. Asda Vibhagool

Speciality: Medicine, Infectious Disease

Language: Spoken: English,Thai

Qualifications: Medical School:

- M.D. Mahidol University, Thailand, 1986

Board Certifications:

- Diplomate of The American Board of Internal Medicine, 1994

Assistant Professor, Rathibodi Hospital, Thailand

Fellowships: Infectious Disease, USA, 1995

Special Clinical Trainings: Infectious Disease

Special Clinical Interests: HIV

Bumrungrad Hospital

www.bumrungrad.com

Soi 1 Sukhumvit Bangkok, Thailand

Good luck

Posted

I am not exactly sure what you mean by "HIV variant", there are many variants of HIV known, is this a new one? I do know that there is a lot of drug-resistant HIV strains in China but it sounds like what you are describing may be different.

If HIV (any variant) has been found in your blood, then you should be able to obtain treatment in Thailand.

I would suggest Dr. Asda at Bumrungrad Hospital, you can make appointment by internet and the hospital can provide Chinese translator. The hospital has offices in Macau and Hong Kong which can help explain and arrange things for you:

Hong Kong:

Janet Li

AFH Health Care Service Limited

Address : 22/F, Euro Trade Centre,

21-23 Des Voeux Road Central,

Hong Kong

Tel : +(852) 3606 9606

Fax : +(852) 2545-3881

E-mail : bihk@afh.

macau:

Dr. Sharon Wong

Metro clinic

Address : Av. da Praia Grande 405,

China Law Building,14th Floor

Macau

Tel/Faxl : +853 (355) 522

Email : [email protected]

It may be easier for you to email or call them as they can explain the details in Chinese an I think they can also arrange appointment for you. Anyway appointment is not hard because Dr. Asda works every day.

Bring all your test results with you to save money on repeat tests.

Name: Dr. Asda Vibhagool

Speciality: Medicine, Infectious Disease

Language: Spoken: English,Thai

Qualifications: Medical School:

- M.D. Mahidol University, Thailand, 1986

Board Certifications:

- Diplomate of The American Board of Internal Medicine, 1994

Assistant Professor, Rathibodi Hospital, Thailand

Fellowships: Infectious Disease, USA, 1995

Special Clinical Trainings: Infectious Disease

Special Clinical Interests: HIV

Bumrungrad Hospital

www.bumrungrad.com

Soi 1 Sukhumvit Bangkok, Thailand

Good luck

[/quote

thanks your your help, you look like God to be able to give many person many year lives equally also to be able to let more people avoid the disaster .I hoped you can please understand Chinese's Thai friends our translation, but is not please a Chinese friend, this request may?

Posted (edited)

你写中文吧. Please write Chinese.

你还有什么问题? What more questions do you have?

你到底要什么? What do you want after all?

Edited by uhuh
Posted

1 我感染了类似HIV的病毒,但是由于国家CDC以查不出抗体为由,也不为我们研究我们到底是中了什么病毒,拒绝给予我们进行尝试性免费抗病毒药

2 我希望我能通过长期检查CD4和CD8免疫监测,自身的症状,以及到大型科研结构做T细胞是否受到攻击的试验等HIV的辅助判断,来泰国请求在CD4极度危机下,进行自费抗病毒尝试治疗.如果出现失败,医疗责任自负.我们的这种病相当有传染性 决不是CD4特发减少症

3 中国现在感染这种病毒的人很多,他们正面临着症状的折磨和痛苦,但政府却不能解决,我们甚至连想自费买药,尝试进行治疗都不行.

下面我发2个 我们这群痛苦之中的病友的呼声::

你们好!

我是中国四川省一名7岁男孩的父亲,今年33岁。冒昧的发邮件打扰你们,实为事出无奈、万般绝望、渴求相助之故。希望专家们相信我所述情况的真实性,希望收到此件的各位专家能耐心读完此信并站在人道的立场给予帮助,我将永远感谢并铭记恩德!

事情是这样的:在一次不慎的行为中,我感染了一种症状、相关辅助检测结果和传染性均与HIV极为相似的病毒(或菌),由于感染3-6个月血清抗体检测呈阴性,于是有一些所访及的医生高度怀疑是一种全新的HIV病毒,也有部分访及的医生怀疑是“真菌”或“致病微生物”,但都不能用科学的手段给予证实。

糟糕的是在多次检测未果后,我便听信一些医生的话,轻率的放弃了与家人的隔离,致使妻子亦受感染,更糟的是年仅7岁的儿子因日常生活中与我们接触十分密切,现在也出现了与我感染之初极为类似的症状。

我恐惧爱滋,但就我个人而言,我关注更多的则是我的妻子和孩子,因为我爱他们。现在,我看到妻子和孩子整天被迟迟不能确诊的病毒(或菌)折磨但始终不能治愈,我心急如焚,精神已频临崩溃边缘,无法坐视不理,我不期望通过这种方式获得你们的同情,从而赐给我有效的治疗药物来延长自己贫贱的生命,我只想通过科学的方法尽快诊断清楚,尽速的给孩子做下排查,我现在所有的希望和侥幸都寄托在孩子身上了,尽管我知道你们所宣传的是日常生活不会传染,尽管生活中我已经足够小心,但我的孩子仍出现了严重的、诸如反复高烧、持续咽炎、持续鼻炎和胃肠方面等一系列感染症状。

我绝不以自己的盲目判断误导各位专家,但从病毒传播者的综合情况、我个人感染该病毒(或菌)至今的身体症状、相关辅助检测、家庭传染性、妻子症状、孩子症状等一系列情况看,该病毒(或菌)极似HIV。在接近一年的时间中,我不断参加HIV相关专家讲座培训、不断查阅HIV相关资料、不断的请教国内相关专家,我确信,我的确感染了不能被现有抗体试剂测出的新亚型的HIV病毒或极为恶劣的细菌,我期待科学的结论。

我之所以向你们求助,是因为我相信你们对生命的尊重,更相信你们世界领先的医学科技,我渴望通过你们的帮助,尽快用科学的手段将此病毒(或菌)诊断出来,然后用同样的手段排查下我的孩子!

在中国国内,类似我这样的家庭,着实不少!很多人都象我一样,生活在无尽的痛苦中,面临精神和肉体的折磨,既不能被确诊,又得不到有效治疗。舍与得,总相伴而行,如果能帮助我们,相信在帮助我们的过程中,你们也一定会在医学领域有新的发现与收获,请帮帮我们,帮帮我们的孩子!我坚信,你们会帮助我的,会帮助我们受尽折磨的人们的!如果得到你们的帮助,我此生将感恩不尽!!!

为便于专家们分析、判断,现将我个人感染前情况、病毒传播方情况、传染过程及我感染该病毒(菌)以来的一些情况真实准确、简明扼要的反映如下,供各位专家初步判断(具体情况附后)

类似HIV病毒(菌)感染过程简介

一、我个人情况介绍:我今年33岁,身高1.71米。有12年吸烟史、8年饮酒史,但在2007年11月感染该病毒(菌)前身体一直非常好,体重始终保持在72.5公斤,不吸毒,平时无任何病痛,家人身体都十分健康。

二、对病毒(菌)传播者的调查了解、回忆情况介绍

某女,情况不明,曾为暗娼。文盲,年龄在25~28岁之间,吸毒,籍贯为四川省某爱滋高发区某镇某村人,在我初次检测时向CDC工作人员如实反映对该人的调查情况后,CDC工作人员证实该村系本市爱滋村(该村多数人吸毒、有爱滋),起初嫁于山东,其丈夫吸毒病亡后,遂辗转深圳、山东、四川等地长期(至少2年以上)从事卖淫活动。调查中,对方称:“是看你酒醉,暴雨中倒地不省人事,差点被雨淋死,遂动恻隐之心救了你,分文未取,你非但不说感谢,还诬陷传染爱滋,真是不识好人心……”,并拒不同意随同前往医院做抗体检测,此后注销调查中得知的手机号码,并隐匿,不知所踪。

该女看上去体质极差、极瘦,调查和回忆证实有持续的严重咳嗽、感冒、腹泄疾病。

三、感染过程

2007年11月,我在一次朋友聚餐中饮酒致醉,在徒步回家途中因酒醉摔碰,致眼部、手掌、膝关节、肘关节等部位有严重出血,然后醉卧于街边。时逢大雨倾盆,朦胧中,有人将我抬上人力三轮,载至陌生环境(第二天才知是某旅馆),遂失去记忆沉睡。大致半夜,因口腔极度干燥,不停叫口渴,适时,有人在我身上动手动脚,误以为是妻子,遂转头躲避,致眼镜边角划破对方脸部,对方血液遂溅入我极度干燥的口腔和眼睛,此后,我仍然认为对方是自己的妻子,未加再意,再一次昏昏沉睡过去。

次日黎明,才发觉自己独自一人趟在十分陌生环境,急忙起身下楼,寻找店主了解情况,才知是一名陌生彝族女子和一名人力三轮车师傅于傍晚8时大雨之际将我抬入到该旅店的。此后醉意仍浓,不能完全辨识方位,遂迅速找出租车乘达家中。到家后,洗脸漱口时,发现口腔有残留血液,才依稀想起沾到对方脸部血液的事,随在草草洗漱后,感觉头很晕,并反复呕吐后再一次沉睡。

彻底酒醒,已是次日傍晚,意识到有可能感染疾病,遂自行与家人采取分餐、分宿,采取简单隔离措施,并及时拨打市CDC和国家01064266958的爱滋病咨询电话,如实反映情况。其工作人员表示:放松心态,期待在3个月窗口期后进行科学检测。此后,我的身体就开始不断出现与免疫低下相关的症状和疾病。

四、怀疑感染原因

酒后口腔极度干燥,牙龈、嘴唇和咽喉等部位有轻微破损,口腔、眼角血液感染。

五、引起感染部位:眼角、口腔

感染后本人及家人出现的症状或现象

真实叙述、无夸张

一、本人情况

(一)6天左右

——口腔出现罕见的大面积口腔溃疡:持续4月,此后反复;溃疡点分布于上下唇内、牙龈、舌下等处;

——口腔上下内嘴唇高度充血,发红:持续2周;

(二)15天左右

——低烧:37度3左右,持续二周;

——咽炎:出现严重咽炎病症,持续3月,此后反复。

——腹泄、便稀:反复持续至今(9个月);

——淋巴结肿大:颌下

(三)30天左右

——口腔极度干燥:持续数月;

——上腭黏膜破损:被开水烫伤感觉,持续至今(10个月)

——口角发炎:两嘴角开始发痛,口不能大张,进食受影响;

——皮肤出现红疹、眼睛发炎:持续数周,服用吴太四维他胶囊后,眼睛症状缓解;

——体重:145斤,正常;

(四)50天左右:

——牙龈极度溃烂、牙根痛:持续数周;

——痔疮肿大、便血:持续数月;

——肌肉跳痛、关节痛、后背痛、乏力、盗汗严重:均持续数月;

——右耳膜熟睡中痛醒多次,有中耳炎症状:持续数周,后反复;

(五)3个月后

——持续的感冒及腹泄;出现类似格林巴利综合症的情况(极度抑郁);

——腮腺两侧开始出白疹(念珠菌):吃饭极易咬到腮腺,白疹持续至今,愈加厉害(七月左右),坚持用达可宁漱口液漱口,无好转。

(六)6个月后

——腮腺开始起肿块,食用烟、酒等刺激性食物后,刺痛。

——颈部不断出现淋巴结,分布于耳根、脖子、颌下等处,且隐痛。

——体重:同事、朋友一致反映,瘦得太厉害。再次找到同一杆称,测量体重为127斤,下降18斤。

——湿疹:腚部,实心小米粒状物,氧,持续数月,花露水擦愈。

二、妻子的情况

(一)妻子情况简述

在隔离期间,妻子和孩子均健康无病。4个月检测为阴性后,听CDC副主任建议,脱恐并放弃隔离后,与妻子有了数次无套性行为(有两次出血),此后妻子出现了非常明显的病毒感染症状。

(二)2周左右:

——低烧、牙龈发炎;持续两周左右;

——阴道念珠感染(医院确诊),白带异常;

——呕吐、拉肚两天两夜,脸吐腊黄,卧床休息两天并服用阿昔洛伟等抗病毒药物后,缓解;

(三)3周左右

——咳嗽:初,未在意,后愈加严重,不得不入院治疗,医生诊断为病毒感染引起的急性肺炎,在住院治疗两月后,症状有所缓解,但仍咳嗽不止,医生遂注射的塞米松等激素药物掩盖症状后出院,出院后仍不停咳嗽至今(已有六月),现用中药调理,效果不大,后反复诊断为:支原、衣原与不明病毒合并感染;

——咽炎:持续咽喉发炎;

——后出现与我极为类似的打嗝、腹胀、肠鸣等症状;

(四)3个月后

——出现腰酸背痛、四肢酸痛等情况。

三、7岁儿子情况

(一)家庭生存环境及孩子情况介绍

孩子7岁,5岁后极少生病,身体非常健康。

全家生活环境较小,为一室一厅一厨一厕的小户型生活环境,出事后,孩子与我们接触非常密切,有同床休息、一起玩、帮孩子洗澡、为孩子洗衣打理等日常生活非常密切的接触,特别是4个月HIV检测为阴性解除隔离后,全家衣物混洗、共餐、与孩子亲吻等行为均存在;孩子因年龄小,非常好动,手、脚等处常有皮肤破损,一段时间口唇有干裂,并因换牙(7岁),门牙掉后,牙龈有出血。

(二)在大致共同生活4月左右后孩子出现的身体异常现象

——突发性反复高烧(39度9)五次:每次高烧间隔约半月左右,医院诊断为病毒感染,注射退烧药物,服用阿昔洛伟等抗病毒药物后好转;

——和我6周左右完全类似的症状:持续不停的打嗝、放屁,持续咽炎、肠鸣(老喊肚子叫得烦)、总是说自己口腔极度干燥;

此后,持续严重的咽炎和鼻炎至今(持续已有六月)。

本人检测情况

——HIV抗体检测:约10余次,最短检测时间为2周,最后一次检测时间为190天。所用试剂为三代、四代、快速、霉联和WB等数种试剂,均呈阴性。

——抑郁和强迫症检测:因其间有医生建议检测强迫症,遂于3-6月,三次检测和测试神经系统疾病,测试后,医生均表示:仅有轻度抑郁,其他无异常。

——肝病检测:于3月、4月两次检测肝功六项和甲乙丙肝,均为阴性,医生并建议我注射乙肝疫苗。

——性病检测:多为两次以上,其中梅毒RPR检测四次,淋病等七项性病检测2次,均无异常。

但三甲医院医生认为:有前列腺嫌疑,因考虑前列腺为小病,未作进一步检测。

——第一次血常规检测:6月时,进行第一次血常规检测,结果为:单核细胞为0.51,高出正常值;血小板计数为80,低于正常值,医生认为:有病毒感染迹象。

——第二次血常规检测:7月时,再检测血常规,血小板升高为147,回归正常值。

——牙龈和口腔检测:医生判定为免疫低下引起的白塞氏综合症,开吴太四维他、维B2等药物,服用后效果不明显。

——胃肠检测:CDC在听取症状介绍后,一致诊断为胃肠植物神经紊乱,医院诊断为免疫过低导致的肠激热综合症。排除胃炎、胃溃疡等疾病。

——肾病诊断:无异常

医院和CDC医生的综合判断情况

1、多数医生认为:肯定感染了某种“病毒”或“细菌、微生物”;建议治疗和调理,多服用乳酸饮品调理。

2、少数医生仍建议:在超过一年时间后,再查1-2次HIV抗体,并建议带妻子一道检测,孩子可不考虑,即使是HIV,感染孩子的机率非常低。

3、个别医生认为:我的自身免疫出了大问题,让自行监测免疫进行治疗。

个人的几点怀疑

1、经咨询多位国内专家后均表示:淋巴、口腔念珠感染,均不是能够恐出来的,就从这两点看:确有病毒或菌感染,但症状却与HIV感染者或轻症期病人丝毫无差,此为高度怀疑的第一点。

2、妻子的感染情况非常明确显示,该病毒(菌)确实可以通过性传染。

3、如果是普通细菌,在经过大量治疗后,病症不该持续这么长的时间,而且情况越来越糟,极少听医生讲过有如此极似HIV的细菌存在,而且无论妻子还是我本人以及孩子,都不能彻底治愈,太奇怪了。

4、我本人曾为军人出身,体格健全,家族五代内未听有任何免疫遗传疾病,即使有,也不该偏偏在沾染吸毒者血液后出现,这种说法,我认为缺乏根据。

上述情况,请相关专家,一定重视,人命关天,孩子那样小,我希望能够尽快明白真相,查出病毒(菌)的情况,尽快排查孩子,安排孩子生活。

Posted

还有一个已经因为这个病发展的太严重的朋友,而一些看法和建议,自己尝试买肝炎的药3TC(在我国不是感染者根本买到不到抗病毒药,只能冒充肝炎患者买到3TC)治疗的总结:

——给新入群者的话

如果你身上出现了所谓“典型”hiv症状,而抗体检测却一直是阴(至少两次间隔6周以上的检测),那么你接下去的检测很可能永远是阴(除非你发生新的感染)。医生

一定会将你排除hiv,并说你症状是恐出来的,你再纠缠,他就说你精神病。不要怪医生,因为这是个新的未知病毒,医生的知识有限。

我通过自己的经验和了解到的情况,总结了这个病有三个典型症状,是大多数hiv阳性患者没有的:1.舌苔白,略带绒毛状;2.皮肤易起压痕;3;关节响。当然还有许

多跟HIV相似的症状,这里不赘述。

目前我对该病的认识是:1.是逆转录病毒;2.传染性极强,即使有保护的性行为、接吻、共用碗筷等都可能传染;3.攻击免疫系统,会造成cd4下降和白细胞下降。

对求诊的建议:在国内医院基本没希望,有条件的可以去国外试试运气。建议定期检测T细胞亚群(三甲医院应该都可以查),以了解自己的病情发展。

对服药的建议:如果cd4持续下降到350以下,cd4/cd8倒置,那么建议用药:拉米夫定(这是抗hiv的一线药中副作用最小的,每个月400元左右);口服胸腺肽(增

强免疫力的);利可君、鲨肝醇(这两种药要配合吃,提升白细胞的)。我用下来,疗效显著,且没有感到明显的副作用。这些药在大的药店可以买到,按规定处方药

是需要医生正规处方的,不过我想私营药店总不会拒绝赚钱的机会吧,你说自己有乙肝,以前医生开过这些药,应该可以搞定。如果这些药全部用,一个月大概千把块

钱,如果觉得经济负担重,可以按从后往前的顺序递减,即只用前面两种药或只用拉米夫定(只用胸腺肽是没用的)。

如果愿意向有关部门反映的,那么就向卫生部上访,只有他们才有权责成业务部门来研究新病毒。可以直接去也可以写信,这是卫生部主页,上面有部长信箱

www.moh.gov.cn。你需要的材料是两次以上hiv抗体阴的检测报告和cd4持续下降低于正常标准的检测报告,光说症状是没用的。最好组团,因为个例引起重视的机会

很小。不建议去纠缠临床医院的医生,研究新病毒不是他们的业务范围,况且对医生来说,你的死活跟他的薪水无关,所以那样做只是浪费你的宝贵时间。

祝大家好运!

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