Industry joins with medical, patient groups to tackle rare diseases in Thailand

[rooster59]

Industry joins with medical, patient groups to tackle rare diseases in Thailand

By THE NATION

 

 

Biopharmaceutical company Takeda has signed a memorandum of understanding (MoU) with medical organisations and patient groups with the aim of improving the study, diagnosis and patient care of rare diseases.

 

Peter Streibl, the general manager of Takeda Thailand Co Ltd, a part of a leading biopharmaceutical company, participated in the joint signing ceremony for an MoU featuring a five-year framework to address rare diseases in Thailand.

 

 

The objective is for Thailand’s medical organisations, rare diseases patient foundations, and Takeda Thailand to develop a work plan and support activities that would improve the standard of care for patients with rare diseases in Thailand.

 

The work under the MoU consists of increasing the scope of studies and research work to better understand rare diseases, improving the skill and efficiency in diagnosis of rare diseases in Thailand, supporting educational programmes for healthcare professionals and patients, working with expert and patient advocacy groups to raise public awareness of rare diseases, supporting the development of a national database of rare diseases, and collaborating with key stakeholders for rare disease policy development.

 

Signatories came from Thailand’s medical organisations and patient foundations, including Medical Association of Thailand; Medical Genetics and Genomics Association (of Thailand); Medical Genetics Network, Genetics Society of Thailand; The Allergy, Asthma, and Immunology Association of Thailand; Thai Rare Disease Foundation; Genetic LSD Foundation and HAE Thailand.

 

Source: https://www.nationthailand.com/business/30375898

 

-- © Copyright The Nation Thailand 2019-09-07

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[Number 6]

Seems like a poor country like Thailand would do better focusing on common illnesses. Hepatitis would be a great start. DENGUE perhaps.

[PatOngo]

The greatest disease facing this country is not rare but quite common, it's corruption and unfortunately there is no medicine to cure it!

[NCC1701A]

i hope they start with "bar girl cough".

 

i read on the internet they all seem to have it. 

 

[sanemax]

6 hours ago, NCC1701A said:

i hope they start with "bar girl cough".

 

i read on the internet they all seem to have it. 

 

a mention of prostitutes already , 3rd post 

[NCC1701A]

1 minute ago, sanemax said:

a mention of prostitutes already , 3rd post 

didn't i ask you politely not to interact with me on this forum?

Again please leave me alone. 

[sanemax]

6 hours ago, NCC1701A said:

didn't i ask you politely not to interact with me on this forum?

Again please leave me alone. 

as you previously replied to me , after  you made that request , you voided your request , otherwise i wouldnt be replying to you, yet, you would be replying to me

[legend49]

Will the TM30 Twitch be addressed in this latest round of cures?

[justin case]

big pharma does not invest in rare diseases, it does not bring in enough cash for the shareholders

 

scare people into taking chemical pills and vaccines , there is the big money

 

does one person deserve to get a million dollar per year of some special medicine, specially if that person will never be productive  and other people will diseases that can be helped, will be left out ?