Downs Syndrome

[catcrumpet]

My son diagnosed Downs Syndrome . Hes ,in thailand now, im off to see him in 2 weeks Help !!

Any help please , cos im at a loss ? Heis now 7 months old , and i cant cope with it

Cat Crumpet

[catcrumpet]

My son diagnosed Downs Syndrome . Hes ,in thailand now, im off to see him in 2 weeks Help !!

Any help please , cos im at a loss ? Heis now 7 months old , and i cant cope with it

Cat Crumpet

Im so fuc_ked off right now , i dont know where to turn . A life long commitment i know , but im so sad right now .

Nothing i can change to make him "normal" , but for me i need support in some way . Nobody teaches you in life to deal / handle this kind of stuff , to be a dad ,yes that comes natural , but this is a living nightmare for me , and i feel so shit right now.

Happy to see him in 2 weeks but me , i just feel so helpless .

Is there anyone on thaivisa , that can guide me ?

[bina]

first, try to get info off the net and from your home country to give u real specifics;

second, someone recently posted on a center for learning disabilities with the words in thai, so find it, and go for a visit may be able to help u; it was in issaan forum also very recent, like in november

third, down syndrome-i think there is some other member (a woman i think) who has a brother with down's so try posting in general to see what response u will get

fourth, downs nowadays is more 'dealable' depending on how developed he is, including physical problems that come with it, but definitely handleable compared to some other things... and thai people seem to have less problem dealing than we do with 'different' children, especially downs as they are very affectionate people.

hope these practical things help u out... but do them as first steps to going forward and helping your son and his momma and you...

good luck

bina

[JUDAS]

Have sent you a PM. Please check.

[catcrumpet]

first, try to get info off the net and from your home country to give u real specifics;

second, someone recently posted on a center for learning disabilities with the words in thai, so find it, and go for a visit may be able to help u; it was in issaan forum also very recent, like in november

third, down syndrome-i think there is some other member (a woman i think) who has a brother with down's so try posting in general to see what response u will get

fourth, downs nowadays is more 'dealable' depending on how developed he is, including physical problems that come with it, but definitely handleable compared to some other things... and thai people seem to have less problem dealing than we do with 'different' children, especially downs as they are very affectionate people.

hope these practical things help u out... but do them as first steps to going forward and helping your son and his momma and you...

good luck

bina

Thanks Bina, Ive sent all the money that," GOD", can send . Which helps treatment etc , as you

may or not know heart and bowl problems with downs , are very common.

Im sending money , and being a good dad .

I have a house in thailand (phimai) and not new on the scene ......but this has taken me by suprise .

Such is life , bad luck etc , but i am a fighter .

I want the best for him

Cat

[catcrumpet]

Have sent you a PM. Please check.

E Mail deleted as per Forum Rules. Sorry.

[bina]

yes i know; since i work with animals in a petting zoo, we get many groups of 'special needs' kids...

actually, we had a group of adults with down syndrme here at our hotel, run by a down syndrome woman who has married (amazing); also, theatre group of adults with downs syndrome...

it is prevalent in israel since abortion is not a major option due to religous laws; and due to the many large families among the religious jews (also some intermarriage but also late life pregnancies and no terminations) ;

since they only are hebrew speakers they wouldnt help u any but still...

yes, i know about the heart and bowel problems (also diabetes, etc)...

dealing with 'special needs' kids is always difficult but especially so when in different cultures and the cultural perceptions and ways of dealing are different, not to mention financial and/or accessibility to therapy/meds, etc....

hang in there....

bina

[Tywais]

Some useful information here:

http://www.downs-syndrome.org.uk/DSA_NewParents.aspx

http://www.ndsccenter.org/resources/background.php

http://www.ndss.org/index.php?option=com_d...6&Itemid=95

[opengoal]

Though not the same medical condition that has befallen your child but something that happened to my wifes daughter gave me little trust in the normal medical services available here. Not wanting to give anybody false hope but if you haven't got more medical opinions do it now.

My wifes daughter was diagnosed as having a tumour in her breast and was one week from removal when we decided to seek a second opinion. The kind of opinion that comes from doctors with better equipment and training outside of Thailand. The Doctors told us it was basically growing pains. 3 years later shes a healthy 18 yr old with both breasts.

[BambinA]

There are many clinics and schools for special children in Thailand (but the details are in Thai) If you are interested in it, i would love to help you.

http://www.childrenhospital.go.th/eng/page_eng2.html

http://www.thaimisc.com/freewebboard/php/v...un&topic=30

http://www.geocities.com/earschool48/index.html - - - this is a school for special children (supported by Princess Sirindhorn)

Edited December 17, 2007 by BambinA

[jay-uk]

PM sent to you today

[chownah]

I'd say first try to calm yourself. People with Down's syndrome are very good people....they are usually pleasant to be around and usually they are good hearted and upbeat too. Of course get all the medical help you can but don't panic ..... your child can still grow up to be a wonderful person.

Chownah

[kash]

The "good" thing about Downs is that they are the most happy and smiling people in the world. you as a father may struggle, I for sure would have been if this had happened to me, but for the child - they will have a great life. I know people with Down's in Scandinavia who has a driving license, they are married and have normal jobs - I think the key thing is to assess the situation and find out where you could benefit the most in terms of your money spending (e.g. important issue if you can apply for a dual citizenship for your child, I guess the welfare system in your home country is much better than Thailand), proper speech training is vital and will include them so much more than for those who don't get it, also include them in social settings, especially music and sports, where they enjoy themselves very much.

Good luck, and I wish you both a happy life which I am sure will include great moments and experiences, no doubt!

[catcrumpet]

Thanks so much for your kind words guys. Im feeling better in myself thanks to your comments .

I will be with him in about 12 days, and i am sure will have a much better understanding of what is happening. He is under going a major bowel operation now as i type, also being monitered for his heart , an operation on that will no doubt be the next course of treatment on the little guy.

So much for him to deal with at 7 months old . This being the second op on his bowel , the first one failed in july this year, and i spent the duration (6 week) sleeping at the hospital in Korrat with him .

Thanks for kind pms , i have forwarded thankyous

Cat

[Goldenbead]

It might be an idea to take him back to your home country where you can consult with doctors who speak the same language as you and will be able to advise you as to a course of action for the future. I have a Down Syndrome child in my class. She is six years old and is very high functioning. That said, I can imagine that raising her has been a challenge for her parents and looking into the future, there will be more challenges.

The thing about this particular family is how "on board" they are regarding the raising of their child. As a couple, they are not together but as far as she is concerned, they are very committed to their roles as parents. Come to Thailand and be there for your son and his mum. Take stock of the situation and look into having evaluations etc in a Western country.

I am sorry you are going through this, it must be very difficult. Best wishes to you and your family for the future.

[ronthompson]

My baby sister is 57 and she has DOWNS syndrome. I have a wealth of experience with the condition, in my opinion it is you and your wife that need support.

You or your wife did NOTHING wrong and do not blame your self.

PM me i will be very happy to answer any questions you may have.

I REPEAT DO NOT BLAME YOUR SELF

My sister was happy always smiling and friendly,

I do wish u well, u are starting a very difficult journey.

[zxc]

Hi,

I know this is an old post but are you aware that Siriraj Hospital has a specialist centre for down's children (and their parents)

Here's the contact details;

Pornswan Wasant MD, FAAP

Professor in Pediatrics,

Head, Division of Medical Genetics,

Department of Pediatrics, Siriraj Hospital

Faculty of Medicine, Mahidol University,

Bangkok, Thailand.

Tel & Fax: 662-419-8414

//e-mail removed as per forum rules - mod//

:-)