Hi Tolley,

My sister also has vitiligo. It is nice to know that your wife did not have to suffer much. We have tried different ways to cure this but no success so far. Can you please tell me what kind of diet plan your wife was in. You also talked about anti-yeast diet. I read that candida yeast can also cause vitligo. Was you wife suffering from this yeast named candida?

Please let me know anything you remember. You know how difficult it is to live with this problem. Because yours is a successful case, I want to know more.. Any small thing may also be of great help.

Thanks a lot.

I just checked with St. Louis Hospital for the price for checking few vitamins and minerals. The prices are below.

1. Vitamin B12 - 950B

2. Vitamin B2 - 1600B

3. Vitamin B3 - 2600B

4. Copper - 500B

5. Zinc - 520B

6. Folic acid - 650B

We will start with Vitamin B12 first.

Does anyone know if there is any package for checking these vitamins and minerals in any hospital here? Package should cost less.

The only places with packages are the various anti-aging clinics and they charge a fortune.

Oh..ok Sheryl. Then better we check them one by one.

I don't think there is any need to check them all unless she shows clinical signs of deficiency. the B12 should be checked because low B12 is often associated with vitiligo. Some studies (not of scientfic standard so evidence not solid) have also suggested an association to low levels of folic acid, copper and Vit C (although the latter is very unlikely unless she eats no fruit). I am not aware of any association for the other vitamins/minerals mentioned.

If it were me I would just test the B12 and copper, and then take a good high potency mutivitamin/mineral supplement that includes the full RDA of all B vits, C, zinc and folic acid. . Which she should do anyhow if she is on a vegan diet.

There are also some reports that gingko balboa is helpful. No solid studies on it but unlikely to do any harm.

i am wondering if anyone should have their b-vitamins checked at all?

(especially at the above prices...)

faik, its not possible to overdose on them... or at least its really difficult to get it managed...

so, its no mistake, to take (at least for a while) vit b12 in quite some doses first, and then add a b-complex...(?)

(i think b12 depots have to be filled first, before folic acid b9 is added)

i thought, it could perhaps be important to have the b-vitamins checked, when there is a more complete blood status taken, in order to explain other unnormal values in the blood status - of which quite a few are caused by or dependend on b-vitamin deficiency/status)...

if it is in fact tinea versicolor, a fungal infection It is easy to fix, in Hawaii the call it Haole Rot [farang rot]

http://www.normangol....com/TINEA.HTML

If you use the selsun [available here everywhere] then lather it up and apply to the affected area a few times a day. takes a week or two to go away

If you use the pills, take two before working out, or something to provide a good sweat, it works from the inside out and kills the fungus right away

[from my pharmisist friend in Maui - Ketoconazole 200mg tabs (take 2 then exercise). Repeat with 2 more tabs 7 to 10 days later.

I get it every few years

I don't think there is any need to check them all unless she shows clinical signs of deficiency. the B12 should be checked because low B12 is often associated with vitiligo. Some studies (not of scientfic standard so evidence not solid) have also suggested an association to low levels of folic acid, copper and Vit C (although the latter is very unlikely unless she eats no fruit). I am not aware of any association for the other vitamins/minerals mentioned.

If it were me I would just test the B12 and copper, and then take a good high potency mutivitamin/mineral supplement that includes the full RDA of all B vits, C, zinc and folic acid. . Which she should do anyhow if she is on a vegan diet.

There are also some reports that gingko balboa is helpful. No solid studies on it but unlikely to do any harm.

Ok Sheryl..we will start with B12 and Copper test..

And about Gingko..yes I also read about it. My wife used to drink (normal) tea every day. And now she has stopped (for vitiligo). We found Gingko tea as its replacement at Tesco.

By the way, can she start multivitamins without consulting doctor??

Thanks

Hello dingdang..thanks for your opinion. As said earlier..we will start by checking vit B12 and copper test first. Lets see what's the result.

Dear Lost in LOS..we don't think it is tinea versicolor. Initially our doctor diagnosed this disease but later three doctor has already told it is vitiligo.

Hi Tolley,

My sister also has vitiligo. It is nice to know that your wife did not have to suffer much. We have tried different ways to cure this but no success so far. Can you please tell me what kind of diet plan your wife was in. You also talked about anti-yeast diet. I read that candida yeast can also cause vitligo. Was you wife suffering from this yeast named candida?

Please let me know anything you remember. You know how difficult it is to live with this problem. Because yours is a successful case, I want to know more.. Any small thing may also be of great help.

Thanks a lot.

I cant really advise more that what I have as I am not qualified to and every individuall is different.

As i said before in her case candida was implicated and she went on an anti yeast diet but she took a lot of vitamins and a herbal potion etc I think also she took something to increase immune function as immune deficiency is also implicated in this type of condition. But you really need to find someone who knows what they are doing and get a consutlation with them. In Thailand i dont think they have naturopaths so the other option is maybe a chinese herbalist but the challenge is fiinding a good one.

latest research shows, that vitiligo patients have too high hydrogen peroxide in the skin cells, which prevents the development of melanin (the color)..

this hydrogen peroxide problem is also a cause of graying hair...

very new research shows that forskohli (indian plant) has positive effects on melanin and acts also against graying hair...

otherwise, the cure - apart from the b, c, e vitamins, zink, seem some amino acids against too high hydrogen peroxide

Thanks for the info dingdang..

if it is in fact tinea versicolor, a fungal infection It is easy to fix, in Hawaii the call it Haole Rot [farang rot]

http://www.normangol....com/TINEA.HTML

If you use the selsun [available here everywhere] then lather it up and apply to the affected area a few times a day. takes a week or two to go away

If you use the pills, take two before working out, or something to provide a good sweat, it works from the inside out and kills the fungus right away

[from my pharmisist friend in Maui - Ketoconazole 200mg tabs (take 2 then exercise). Repeat with 2 more tabs 7 to 10 days later.

I get it every few years

It is not tinea versicolor, it is vitiligo. Entirely different condition.

By the way, can she start multivitamins without consulting doctor??

Thanks

Yes, no problem

Ok Sheryl..thanks

Thanks Tolley for the information. I will try to find a good chinese herbalist.

An update.

We visited Dr. Natta at Ramathibodi. We found her very good and supportive. Thanks Sheryl for telling us to meet her.

She also diagnosed vitiligo and suggested us to use protopic for 2 weeks followed by 2 weeks treatment by steroid. She has added vitamin C and vitamin E capsules. She has also prescribed psolaren (i guess) to be used before going for sun therapy. This treatment will be done for 8 weeks. If no sign of good result then she will start phototherary in hospital itself.

good, I am glad you saw her, you are now being treated by the very best.

My wife got her blood report. Her B12 is normal but she has high iron deficiency. So, she has recently started medication for that too. However, she has stopped having medicine for thyroid from her doctor's suggestion. Her thyroid is fluctuating between hyper and hypo.

The good news is she is getting few signs of pigmentation in her unpigmented areas. A small brown dot has appeared in white areas and it is increasing its size slowly. I use to take pictures of those areas and seems their size is becoming smaller...

Glad to hear it.

Re her thyroid sounds like she may Hashimoto's, which is an autoimmune thyroid condition. Often coincides with vitiligo since both are the result of a hyperactive immune system.

Management of Hashinmotos is complex so hope you have a good thyroid specialist.

Thanks Sheryl.

I cannot go directly to Hashimoto's disease as her diagnosis is still in initial phase. We are treating her thyroid with the specialist. Let's see what happens in her next test.

Right now, we are happy as her pigmentation is seen in most of the places, though its still long way to go. So, we are assuming that whatever medication, meal and exercise she is in, should be in right direction.

Hoping for the best...

Btw, sorry for late response as I was busy with my deadline at office.

Interesting topic, my lady has just been diagnosed with vitiligo while in Bangkok, she has returned home to Chiang Mai. Does anyone know of a good specialist in CM?

Also, according to my ( patchy ) research, it's reckoned that daily home use exposure to UV lamps is better than visiting a clinic once or twice a week. Does anyone know where to get the lamps in either CM or Thailand? Plus any comments about UV lamp use would be welcome.

Interesting topic, my lady has just been diagnosed with vitiligo while in Bangkok, she has returned home to Chiang Mai. Does anyone know of a good specialist in CM?

I don't know of anyone but SriPat Dermatology dept would be where to look.

My lady attended a clinic today and was told she required UV treatment twice a week for 6 - 12 months. 500 baht per session. It seems a bit simplistic to me, I'll get the details of the clinic and post them here.

On 7/18/2012 at 9:50 AM, pratikdbl said:

Thanks Sheryl.

I cannot go directly to Hashimoto's disease as her diagnosis is still in initial phase. We are treating her thyroid with the specialist. Let's see what happens in her next test.

Right now, we are happy as her pigmentation is seen in most of the places, though its still long way to go. So, we are assuming that whatever medication, meal and exercise she is in, should be in right direction.

Hoping for the best...

Btw, sorry for late response as I was busy with my deadline at office.

Hi Pratik. How is your wife doing right now? I was searching for discussions about the same condition which my son is facing and your post came up. The doctors are not able to give a correct diagnosis. Could you find a good doctor in Bangkok who could give you satisfactory treatment? Thanks

3 hours ago, Rom Rom said:

Hi Pratik. How is your wife doing right now? I was searching for discussions about the same condition which my son is facing and your post came up. The doctors are not able to give a correct diagnosis. Could you find a good doctor in Bangkok who could give you satisfactory treatment? Thanks

 

this thread is almost 10 years old and the OP has nto logged onto this forum in about 6 years.

 

In Bangkok I would suggest the Institute of Dermatology (government hospital) on Ratchawithi near Victory Monument.