Urethal Stricture Issues

[PatOngo]

7 minutes ago, ThaiPauly said:

But I have to push my pee out now, the doc said I should not do that. So I have to stand waiting for it to come out into some vessel that looks like a hat, then the nurse comes to check it and dispose of it for some reason

Maybe a catheter will make things easier, worth discussing with the urologist.

[PatOngo]

I had a hydro dynamic test on my bladder, confirmed the problem, catheter works well for me. I wish you good luck.

[xylophone]

4 minutes ago, PatOngo said:

Maybe a catheter will make things easier, worth discussing with the urologist.

Use of a catheter for a few weeks can help to "retrain" the bladder to empty properly and Ucholine tablets can help if there is any nerve damage/dysfunction of the bladder.

 

Your pain seems to be at the high end of the scale Pauly and I never thought it could be that high, having suffered from prostatitis for decades.

[ThaiPauly]

Even the nurses are saying that I have chronic prostitis, so at last there is hope that the doctors here can cure it. I'm now getting stronger antibiotics, the area that Xylaphone alluded to is a ".Medical Wasteland" and the a/b's really need to be able to penetrate the film coating of the prostate to do their job.

I suppose if they cannot get rid of it, as sometimes is the case then it can be removed as a last resort

 

Did I really need a cystocopy I wonder?

[xylophone]

30 minutes ago, ThaiPauly said:

Even the nurses are saying that I have chronic prostitis, so at last there is hope that the doctors here can cure it. I'm now getting stronger antibiotics, the area that Xylaphone alluded to is a ".Medical Wasteland" and the a/b's really need to be able to penetrate the film coating of the prostate to do their job.

I suppose if they cannot get rid of it, as sometimes is the case then it can be removed as a last resort

 

Did I really need a cystocopy I wonder?

If I recall you have had lots of cystoscopies, so not sure what another one will uncover??

 

You should be aware that bacterial prostatitis can be curable with the right antibiotics, given, over a lengthy period of time, but not always!!

 

Then it is not known what causes non-bacterial prostatitis, so it is hit and miss with this condition, but anti-inflammatories can help alleviate the pain, but as I stated earlier either condition shouldn't cause this extreme pain??

 

Good luck with the next set of tests and treatment.

[ThaiPauly]

8 minutes ago, xylophone said:

If I recall you have had lots of cystoscopies, so not sure what another one will uncover??

 

You should be aware that bacterial prostatitis can be curable with the right antibiotics, given, over a lengthy period of time, but not always!!

 

Then it is not known what causes non-bacterial prostatitis, so it is hit and miss with this condition, but anti-inflammatories can help alleviate the pain, but as I stated earlier either condition shouldn't cause this extreme pain??

 

Good luck with the next set of tests and treatment.

Hello buddy.

I was just saying that I wonder if the cystocopy that I recently had was warranted?

The infection specialist immediately diagnosed chronic prostitis and put me on stronger a/ b's at once.

Do you know how long I will have to stay here on a drip,? although I know I have to get out of chronic pain before I am discharged, then I take it I can go on oral medication. Would my thinking be correct? I have also heard that alpha blockers are useful for my condition? They haven't given me any yet.

Cheers Paul

 

 

 

 

[BritManToo]

1 hour ago, xylophone said:

Then it is not known what causes non-bacterial prostatitis, so it is hit and miss with this condition, but anti-inflammatories can help alleviate the pain, but as I stated earlier either condition shouldn't cause this extreme pain??

Bacterial infections in that area can be very painful, cystitis, I believe it's called and more common in women.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5730899/

Edited January 1, 2021 by BritManToo

[xylophone]

11 hours ago, BritManToo said:

Bacterial infections in that area can be very painful, cystitis, I believe it's called and more common in women.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5730899/

Although some researchers have suggested that cystitis and chronic nonbacterial prostatitis could be one and the same, it is not a commonly held view amongst others, especially those professors and specialists in this area.

 

Another line of thought is that upon careful analysis of prostate fluids, it was found that there were many types of bacteria and pathogens which inhabited the prostate, and which had never been tested for, nor would they be in a normal hospital laboratory setting. Then even if they were found/diagnosed, there is the problem of getting past the biofilm which these bacteria can produce, as well as being able to penetrate the prostate's protective barrier (as Pauly referred to earlier), so all in all a difficult proposition.

 

In addition there was a specialist unit in a hospital in the Philippines, run by a professor of urology, which advocated injecting certain antibiotics directly into the prostate in order to cure the condition and although the success rate wasn't perfect, I believe it was in the 70% area, so quite a few patients were happy with the results.

 

Again as Pauly mentioned, this area and this condition was referred to by one of the top specialists in the USA as "a medical wasteland" because nobody had come up with a definitive answer to it, or for that matter a definitive treatment (it's all a bit hit and miss).

 

As regards the pain, I am aware of the type of pain that both of these conditions can produce, and I'm also aware of the amount of pain that poor Pauly has been in (we communicate outside of these posts) and IMO it would seem extreme for these conditions, although of course pain affects people in different ways, and I would love to be wrong so that a treatment/cure could be found for this poor man's suffering.

 

 

[xylophone]

13 hours ago, ThaiPauly said:

Hello buddy.

I was just saying that I wonder if the cystocopy that I recently had was warranted?

The infection specialist immediately diagnosed chronic prostitis and put me on stronger a/ b's at once.

Do you know how long I will have to stay here on a drip,? although I know I have to get out of chronic pain before I am discharged, then I take it I can go on oral medication. Would my thinking be correct? I have also heard that alpha blockers are useful for my condition? They haven't given me any yet.

Cheers Paul

 

 

 

 

If chronic prostatitis has been diagnosed, then it will be treated with antibiotics if it is indeed chronic bacterial prostatitis, however different countries and different specialists recommend using different antibiotics to treat it!

 

Indeed the professors I just recently liaised within in Sydney and London, who have been researching this condition for some time, use a small cocktail of antibiotics, one of which is rarely used these days, Fosfomycin, backed up by doxycycline, and if necessary a short course of clarithromycin.......so you can see that it is a difficult "infection" to treat, although these guys have had some very good success with their regimen.

 

Certainly being on a drip helps to get whatever antibiotic you're on, to the frontline quickly, and this can be changed to an oral route a little later, and it wouldn't surprise me if you were on intravenous ciprofloxacin. And this antibiotic can be taken orally and is frequently prescribed here.

 

As regards alpha blockers, some research I've seen on this suggest that when tested against a placebo, there is no difference, whereas Quercetin, a naturally occurring flavonoid in some fruits and vegetables, does have antioxidant and anti-inflammatory properties, and does show some improvement in some people.

 

As you can see, treatment for this condition or similar is "many and varied".
 

[Surelynot]

16 hours ago, ThaiPauly said:

I have also heard that alpha blockers are useful for my condition?

I am currently on quick acting alpha blockers......only one persons experience I know.....but they have (or do seem to have) improved urine flow.....I still have to double micturate, which can take some time.

 

Off the pain killers now, which knocked me sideways, so the discomfort/pain is returning.

 

PSA velocity test tomorrow to determine if it might be cancer and then a biopsy if required......that's something to look forward to......really could do without this.

[xylophone]

14 minutes ago, Surelynot said:

I am currently on quick acting alpha blockers......only one persons experience I know.....but they have (or do seem to have) improved urine flow.....I still have to double micturate, which can take some time.

 

Off the pain killers now, which knocked me sideways, so the discomfort/pain is returning.

 

PSA velocity test tomorrow to determine if it might be cancer and then a biopsy if required......that's something to look forward to......really could do without this.

They seem to improve urine flow for some folks, but probably won't help with prostatitis pain......??

 

Best of luck with your tests tomorrow and we can hope for the best.

[Surelynot]

2 minutes ago, xylophone said:

They seem to improve urine flow for some folks, but probably won't help with prostatitis pain......??

 

Best of luck with your tests tomorrow and we can hope for the best.

Cheers, thanks for that.....funny thing is......alcohol (not being funny) seems to resolve, temporarily at least, all the symptoms I have.....the discomfort/pain goes, the desire to pee goes,.....on New Year's eve we went out at about 2100....home about 0400....never bothered me once????

[BritManToo]

40 minutes ago, Surelynot said:

Cheers, thanks for that.....funny thing is......alcohol (not being funny) seems to resolve, temporarily at least, all the symptoms I have.....the discomfort/pain goes, the desire to pee goes,.....on New Year's eve we went out at about 2100....home about 0400....never bothered me once????

Agree.

Cannabis also helps ...... so a friend told me.

 

I've been having similar problems to the OP, for the same length of time.

Couldn't pee at all in April 2019, catheter fitted for 4-6 weeks, doxazosin 5mg/day cured most of the problems.

I politely refused their offer of a TURP after hearing/reading so many reports of unhappiness with the results.

Finasteride 5mg every other day, not sure it does anything, but again i was desperate to try anything.

Also take saw Palmetto 450mg (with Zinc) 2x a day ($40 a year from Iherb), quack quack, but it can't hurt.

Also walk 5Km every morning, 4Km every evening which really seems to help.

 

Still get the urgent urge to pee, for no apparent reason once or twice a day (usually during my walks), but the original condition (can't pee at all) is no longer a significant problem.

 

Best of luck to you TP, hope you recover soon.

Edited January 2, 2021 by BritManToo

[xylophone]

59 minutes ago, Surelynot said:

Cheers, thanks for that.....funny thing is......alcohol (not being funny) seems to resolve, temporarily at least, all the symptoms I have.....the discomfort/pain goes, the desire to pee goes,.....on New Year's eve we went out at about 2100....home about 0400....never bothered me once????

That settles it then........I will become a full-time drinker if mine returns!!

[ThaiPauly]

I have seen the infection specialist and the pain specialist this morning.

As far as the pain goes she has reduced the quantity of Pethadine from 50ml to 30ml but increased the frequency that I get the shots, now they come every 4 hours instead of 6!!

Also a stronger Fentynal patch that will start working tomorrow apparently

The infection doc said that obviously these infections are very hard to cute and reckons that Zi will need IV every day for ,2:,weeks, but we have agreed that if my pain will be tolerable by Monday that I can come in for them instead of being a patient.

Pain Doc has said she will give me Ganglion impar block on Monday

[Surelynot]

15 minutes ago, xylophone said:

That settles it then........I will become a full-time drinker if mine returns!!

Tempting isn't it....some wack-backy.....as a back up.

[Surelynot]

Just now, ThaiPauly said:

I have seen the infection specialist and the pain specialist this morning.

As far as the pain goes she has reduced the quantity of Pethadine from 50ml to 30ml but increased the frequency that I get the shots, now they come every 4 hours instead of 6!!

Also a stronger Fentynal patch that will start working tomorrow apparently

The infection doc said that obviously these infections are very hard to cute and reckons that Zi will need IV every day for ,2:,weeks, but we have agreed that if my pain will be tolerable by Monday that I can come in for them instead of being a patient.

Pain Doc has said she will give me Ganglion impar block on Monday

Fingers crossed for you......

[ThaiPauly]

23 hours ago, PatOngo said:

I had a hydro dynamic test on my bladder, confirmed the problem, catheter works well for me. I wish you good luck.

Do you wear it permanently or self catheterise?

My pee has slowed down and my urologist is once again talking about self cathetisation which I am dreading ☹️

[PatOngo]

3 minutes ago, ThaiPauly said:

Do you wear it permanently or self catheterise?

My pee has slowed down and my urologist is once again talking about self cathetisation which I am dreading ☹️

I wear it permanently, it gets changed every six weeks. Not by me.

[xylophone]

1 hour ago, ThaiPauly said:

Do you wear it permanently or self catheterise?

My pee has slowed down and my urologist is once again talking about self cathetisation which I am dreading ☹️

Does he know why this is happening??

 

I had the same thing and self catheterised 3 times a day for a few weeks and my bladder "learned" to empty again (according to the urologist; a top one in Australia). Had to do the same again here after a bladder neck operation to widen it caused a very weak flow, this and the Ucholine tablets helped a lot and now don't need to do either any more (fingers crossed).

 

I always want the specialist to explain in detail what happens and why, even here.

[BritManToo]

3 hours ago, ThaiPauly said:

Do you wear it permanently or self catheterise?

My pee has slowed down and my urologist is once again talking about self cathetisation which I am dreading ☹️

No need to dread ..... it's easy, doesn't hurt, I considered it a minor inconvenience.

Buy yourself some Thai 'circus pants' and nobody will ever know.

The bag has a loop you can tie round the side of your knickers. 

 

No need for a bag, you can use your bladder as the bag.

i bought some of these from the UK, dump the bags, use the valve on the end of your catheter.

https://www.amazon.com/Ugo-Leg-Bags-Drainage-Leg-Shape/dp/B07DX1VJ79/ref=sr_1_9

 

Couldn't find them in Thailand.

Edited January 2, 2021 by BritManToo

[xylophone]

17 hours ago, ThaiPauly said:

Do you wear it permanently or self catheterise?

If you self catheterise you don't need a bag as you simply insert the catheter up the urethra and into the bladder entrance to drain your urine, then when it stops, gently slide the catheter out (obviously clean it thoroughly) and you are all set to go, without any "attachments", and you will do this say, three times a day, and as time goes on you may find you are peeing more and more normally without it.

 

There is no pain as such, provided you use the Xylocaine Jel and the whole process, including cleaning, takes around 5 minutes, and once you get used to it, it's a doddle as they say.

[Surelynot]

17 hours ago, ThaiPauly said:

Do you wear it permanently or self catheterise?

My pee has slowed down and my urologist is once again talking about self cathetisation which I am dreading ☹️

Hi...How goes it?

 

Any better?

[ThaiPauly]

44 minutes ago, Surelynot said:

Hi...How goes it?

 

Any better?

Not really.

Doc has just been in (urologist) and he says that getting rid of the prostitis issue  takes time as Xylaphone has alluded to in his posts. But it's gotta be within 20 days.... hasn't it?

I am still taking Pethadine every four hours and I am really not happy about that even though the dose has been lowered from 50ml to 30ml. I am probably addicted to it now unfortunately

At least I peed a lot this morning so that may give a a reprieve for now.

I am surprised that the doc never asked to check my  old man to see how it was healing up after he prescribed to types of cream?

[xylophone]

3 minutes ago, ThaiPauly said:

At least I peed a lot this morning so that may give a a reprieve for now.

That, my friend, is good news. Drink lots of fluids and I mean lots, to see if it improves the flow.

Edited January 3, 2021 by xylophone

[ThaiPauly]

3 minutes ago, xylophone said:

That, my friend, is good news. Drink lots of fluids and I mean lots, to see if it improves the flow.

Thanks Buddy

[BritManToo]

1 hour ago, xylophone said:

If you self catheterise you don't need a bag as you simply insert the catheter up the urethra and into the bladder entrance to drain your urine, then when it stops, gently slide the catheter out (obviously clean it thoroughly) and you are all set to go, without any "attachments", and you will do this say, three times a day, and as time goes on you may find you are peeing more and more normally without it.

 

There is no pain as such, provided you use the Xylocaine Jel and the whole process, including cleaning, takes around 5 minutes, and once you get used to it, it's a doddle as they say.

Would also point out the catheter 'stretches' the blocked area, so even when it's taken out there is increased flow as it takes a while for the block to constrict again. Which is how the doctor explained it to me when I had one in for a month.

Antibiotics also increase your flow while you're taking them.

 

Good luck TP, getting old ain't easy for anyone.

[Rimmer]

A troll post has been removed

[xylophone]

4 hours ago, BritManToo said:

Would also point out the catheter 'stretches' the blocked area, so even when it's taken out there is increased flow as it takes a while for the block to constrict again. Which is how the doctor explained it to me when I had one in for a month.

But inserting the catheter for a few minutes, three times a day will not have that action.

[BritManToo]

17 minutes ago, xylophone said:

But inserting the catheter for a few minutes, three times a day will not have that action.

Are you sure??