Recommendations for chronic conditions such as Mast Cell Activation Syndrome (MCAS), Hypermobility, and Mycotoxin related symptoms

[simbaahoor]

I was diagnosed with Ehler's Danlos Syndrome, as well as Mast Cell Activation Syndrome (MCAS), when I was in the US about ten years ago. My conditions were mild back then. However, recently my conditions got worse, I got more joint pain that interrupts my sleep at night, as well as some allergy symptoms that resulted in fainting. I went to see a geneticist, and an immunologist at a few private hospitals in Bangkok. However, all the doctors just prescribed me some NSAIDs, and allergy relief meds, and reassured me that I am absolutely normal, and it's all in my head. I never realized doctors here would blame patients for their conditions if they cannot find a way to heal.

 

So I went for a telemedicine with a specialist from the US, he would like to do some blood work for MCAS, and Mycotoxin, in which both the hospitals here do not have tested. So I only did my Mycotoxin test by sending urine sample to a lab in the US. The results are positive, however, since I cannot do other types of blood work, the physician cannot proceed. For now, I only rely on internet resources, and Facebook groups to help me with the conditions. So I am quite discouraged at this point. Does anyone else have similar chronic conditions? Any physicians do you recommend?

[Sheryl]

Have you consulted this immunologist:

 

https://www.bumrungrad.com/en/doctors/Hiroshi-Chantaphakul

 

If not, he is who I would suggest.

 

Before going, get a written report from your US doctor including recommendation for further blood tests