Restless legs driving me crazy.

[yrag]

I posted answer to your problem, does not show up ????

 

[lvr181]

6 hours ago, yrag said:

I posted answer to your problem, does not show up ????

 

Post again??

[Sheryl]

Thanks Sheryl. I did call my symptoms a Hypnic Jerk in my opening post.

Another term used when the jerks are unusually severe (as seems to be the case for you) is Periodic Limb Movement Disorder (PLMD).

 

You should see a neurologist specializing in sleep medecine and will need to undergo a sleep study.

 

The best such specialist is Dr. Jakrin Loplumlert at Bangkok Hospital in Bkk. If you are in Pattaya Dr. Niratchada Supa-anon is also well qualified and has hours at Bangkok Pattaya hospital.

 

Sent from my SM-J701F using Thailand Forum - Thaivisa mobile app

 

 

 

[giddyup]

23 minutes ago, Sheryl said:

Another term used when the jerks are unusually severe (as seems to be the case for you) is Periodic Limb Movement Disorder (PLMD).

 

You should see a neurologist specializing in sleep medecine and will need to undergo a sleep study.

 

The best such specialist is Dr. Jakrin Loplumlert at Bangkok Hospital in Bkk. If you are in Pattaya Dr. Niratchada Supa-anon is also well qualified and has hours at Bangkok Pattaya hospital.

 

Sent from my SM-J701F using Thailand Forum - Thaivisa mobile app

 

 

 

Thanks Sheryl, I'm in Pattaya so Dr Supa-anon would be my choice.

[JRUSA]

16 hours ago, giddyup said:

I don't have RLS, I have Hypnic Jerks. Do you mean Lyrica?

Yes, auto correct got me..

[Chivas]

Yep I have the same managed with 10mg Baclofen taken around 6pm daily

Its a nasty little illness which others wouldnt understand especially when it "spreads" and you find yourself having to literally "move" every 20 seconds. Very debilitating every sympathy

[transam]

Many years back with the OP's ploblem I was told to stand on a cold surface, but that was back home and it worked. I started getting it again in LOS, no real cold surface...As I go to the gym I wasn't really interested in doing leg stuff, but I got the lower leg fidgets at night in bed, so I did a simple exercise, standing on my toes lifting my weight 20 times, repeat the same three times.  ploblem gone..Might be worth a try, no gym needed..

[UPDEHSOI]

On 9/20/2018 at 11:55 PM, CGW said:

Does or would "grounding" help, do you live in a condo? if you live in a house and walk outside barefoot this is obviously not going to help.

Grounding, if done properly helps in many many instances. Also, exercises ( especially leg exercise ) help somewhat. And make sure your zinc level is up to par. Many people with RLS have low zinc levels. My friend got her zinc level up and it help quite a bit.

 

[BlackJack]

3 hours ago, giddyup said:

Thanks Sheryl, I'm in Pattaya so Dr Supa-anon would be my choice.

 

try this

put it on the leg giving issues and sleep with it on

seems to heat up and support the nerves and muscles 

[xtrnuno41]

21 hours ago, GTgrizzly said:

Clofen is also known as Baclofen

Guess a brother medicine from diclofenac, a muscle relaxing medicine.

Good to know about it. 

 http://www.medicines.org.au/files/afpclofe.pdf

[giddyup]

Anyone know if Clofen or Baclofen is available in pharmacies in Pattaya? Also the price if it is.

Edited September 22, 2018 by giddyup

[Sheryl]

Try Fascinos. There are locally made brands as follows:

 

Baclofen Pharmadica

Liobac

Fenisal

 

The drug does not always work but apparently does help some people. Do not substitute self treatment with it for seeing a doctor as sometimes (rare) this can be caused by a spinal tumor or other serious problem.  Also, it is often triggered by sleep deprivation due to sleep apnea, which can be treated thus removing the cause (and getting you better quality sleep).

 

And of course read up on contraindications and potential side effects.

[Aussieroaming]

9 hours ago, giddyup said:

Anyone know if Clofen or Baclofen is available in pharmacies in Pattaya? Also the price if it is.

I have been on perscription Sifrol for donkey's years for RLS. Readily available here at about 1300 baht per 30 tabs.

 

I found Tramadol effective but at high doses, which didnt appeal.

 

Baclofen didnt help me when i tried unfortunately.

 

No alcohol and avoiding sugar has some minor benefit, though nothing to right home about.

[giddyup]

6 hours ago, Sheryl said:

Try Fascinos. There are locally made brands as follows:

 

Baclofen Pharmadica

Liobac

Fenisal

 

The drug does not always work but apparently does help some people. Do not substitute self treatment with it for seeing a doctor as sometimes (rare) this can be caused by a spinal tumor or other serious problem.  Also, it is often triggered by sleep deprivation due to sleep apnea, which can be treated thus removing the cause (and getting you better quality sleep).

 

And of course read up on contraindications and potential side effects.

Thanks

[giddyup]

43 minutes ago, Aussieroaming said:

I have been on perscription Sifrol for donkey's years for RLS. Readily available here at about 1300 baht per 30 tabs.

 

I found Tramadol effective but at high doses, which didnt appeal.

 

Baclofen didnt help me when i tried unfortunately.

 

No alcohol and avoiding sugar has some minor benefit, though nothing to right home about.

I drink rarely now, but I suppose I consume a bit of sugar in coffee, biscuits etc. I guess the Sifrol works if you have been on it a long time?

[Sheryl]

I drink rarely now, but I suppose I consume a bit of sugar in coffee, biscuits etc. I guess the Sifrol works if you have been on it a long time?

It is a pretty serious med. I really don't advise taking it on your own. See doctor.

Sent from my SM-J701F using Thailand Forum - Thaivisa mobile app

[giddyup]

3 minutes ago, Sheryl said:

It is a pretty serious med. I really don't advise taking it on your own. See doctor.

Sent from my SM-J701F using Thailand Forum - Thaivisa mobile app
 

OK, will do.

[Kieran00001]

21 hours ago, transam said:

Many years back with the OP's ploblem I was told to stand on a cold surface, but that was back home and it worked. I started getting it again in LOS, no real cold surface...As I go to the gym I wasn't really interested in doing leg stuff, but I got the lower leg fidgets at night in bed, so I did a simple exercise, standing on my toes lifting my weight 20 times, repeat the same three times.  ploblem gone..Might be worth a try, no gym needed..

 

Excellent advice and the first thing he should try!  And certainly a long time before those last resort drugs that have been suggested.  A lot of people who suffer from this are not exercising their legs enough, your legs involuntarily moving could be an early warning sign of deep vein thrombosis, the restless legs being the bodies natural way of trying to shift small blood clots.  Taking drugs to relax the muscles to the point that the body cannot shake out these blood clots could mean that you got a serious blood clot much more quickly than you would have done without them.

[Sheryl]

He does nto have restless legs, he has periodic limb movement disorder (hypnic jerks). Thread title was a misnomer.

[giddyup]

28 minutes ago, Sheryl said:

He does nto have restless legs, he has periodic limb movement disorder (hypnic jerks). Thread title was a misnomer.

Funny thing is it seemed to start off as RLS years ago, which occurred infrequently, then it seemed to progress to more often, and now into the hypnic jerks.

[Kieran00001]

51 minutes ago, Sheryl said:

He does nto have restless legs, he has periodic limb movement disorder (hypnic jerks). Thread title was a misnomer.

 

How have you arrived at this conclusion, Doctor?  What we know is that he has Periodic Limb Movements in Sleep, but we also know that 80% of RLS sufferers also have PLMS, as do a high percentage of sufferers of obstructive sleep apnea, REM sleep behaviour disorder and narcolepsy, its important to properly rule things out before making a diagnosis of disorder, isn't it, Doctor?

 

Quote

Periodic Limb Movement Disorder (PLMD) is often confused with RLS. PLMD is diagnosed when there is a sleep complaint such as insomnia or daytime sleepiness and polysomnography shows frequent periodic limb movements, which may be associated with arousals. The finding of PLMS alone is not sufficient to make a diagnosis of PLMD. Symptoms must be present which cannot be attributed to any other medical, psychiatric or sleep disorder. Therefore, a patient with RLS who has PLMS does not have PLMD. Regardless, the therapeutic approach to RLS and PLMD is similar.

 

Dr Lim Li Ling, Sleep Disorders Unit, Singapore General Hospital National Neuroscience Institute, Singapore

 

[lvr181]

8 minutes ago, Kieran00001 said:

 

How have you arrived at this conclusion, Doctor?  What we know is that he has Periodic Limb Movements in Sleep, but we also know that 80% of RLS sufferers also have PLMS, as do a high percentage of sufferers of obstructive sleep apnea, REM sleep behaviour disorder and narcolepsy, its important to properly rule things out before making a diagnosis of disorder, isn't it, Doctor?

 

 

Unless you're a properly trained medical practitioner and have examined the patient then this is not the place to determine what the OP has or assumes they have (unless he/she has attended for a proper medical examination/consultation). Making suggestions about various illnesses and possible relief or cure is about the best that ANYONE can do ON THIS FORUM (sans snide remarks).  

[transam]

Along with the leg fidgets in bed, which drove me up the wall, l also had mega pain around my knees, never during the day though, only when l relaxed in bed....Simple leg exercises with weight cured it...Well worth a try..

[Kieran00001]

4 minutes ago, lvr181 said:

Unless you're a properly trained medical practitioner and have examined the patient then this is not the place to determine what the OP has or assumes they have (unless he/she has attended for a proper medical examination/consultation). Making suggestions about various illnesses and possible relief or cure is about the best that ANYONE can do ON THIS FORUM (sans snide remarks).  

 

Its true, but I was trying to imply, avec snide remarks, that even a doctor could not make this diagnosis without first ruling out some other syndromes and that would mean actual tests rather than as we have here, just an anecdote.

[transam]

14 minutes ago, Kieran00001 said:

 

Its true, but I was trying to imply, avec snide remarks, that even a doctor could not make this diagnosis without first ruling out some other syndromes and that would mean actual tests rather than as we have here, just an anecdote.

My UK doctor could not fix a ploblem I had...I had a friend who was a Professor working in the area of my ploblem...He told me to ask my doctor to write to him for an appointment, doctor said you will not see him, l said can you just write the letter..?

Saw him.................SORTED.....

[Aussieroaming]

11 hours ago, giddyup said:

I drink rarely now, but I suppose I consume a bit of sugar in coffee, biscuits etc. I guess the Sifrol works if you have been on it a long time?

The sifrol works immediately, meaning within a couple of hours of ingestion.  I try to cycle off of it every so often and it works straight away on resumption. I have been on them for close to 10 years. Every so often i try to cut out the medication and i end up tormented again. I do find the sugar really kicks mine off, hence why i reduced sugar and stopped alcohol. I found alcohol aggravated things unless I drank enough to become comatose (not sustainable lifestyle). Keeping my legs cold at night helps too.

[giddyup]

5 minutes ago, Aussieroaming said:

The sifrol works immediately, meaning within a couple of hours of ingestion.  I try to cycle off of it every so often and it works straight away on resumption. I have been on them for close to 10 years. Every so often i try to cut out the medication and i end up tormented again. I do find the sugar really kicks mine off, hence why i reduced sugar and stopped alcohol. I found alcohol aggravated things unless I drank enough to become comatose (not sustainable lifestyle). Keeping my legs cold at night helps too.

Any bad side effects?

[Aussieroaming]

2 hours ago, giddyup said:

Any bad side effects?

No

[lvr181]

17 hours ago, giddyup said:

Any bad side effects?

Like any form of prescribed drug there can be side effects. It is about being aware of what side effects may happen to you so that you can talk to your medical practitioner about them.

 

"Google" Sifrol.

[giddyup]

25 minutes ago, lvr181 said:

Like any form of prescribed drug there can be side effects. It is about being aware of what side effects may happen to you so that you can talk to your medical practitioner about them.

 

"Google" Sifrol.

I know what the side effects for Sifrol are, or can be, I was asking if Aussieroaming suffered any of them.