Neither Bumrungrad nor Bangkok hospital found the cause for perineal nerve problem. Any options ?

 

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Perineal or peripheral? There is a big difference.

Some detail would be helpful.

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If it is peripheral neuropathy, I can feel for you - been there, doing that.  My neurologist is stumped and has been for 2 years.

 

On the good side, it seems to eliminate/ameliorate  itself over time.  ATM it seems down about 60% and starting to sleep through the night for the first time in years.

Evidently 30 to 40 percent of cases of peripheral neuropathy are due to unknown causes.

 

Has diabetes, spinal cysts/compression (by MRI of back), HIV, Lyme's and Vitamin B12 deficiency been eliminated?

 

Have you had any nerve conduction tests done?

 

Pain starts in the middle of n. profundus. When agitated by exercises can cause hypersensitivity to foot, so strong that putting weight on is impossible. EMG shows several nerves not functioning, old hemiparalysis, was irrelevant, walking, biking no problem.

EMG was done in a resting position. Want one done while leg in movement, Is it possible?

I see. So not perineal (which is the genital area) but peroneal.

No I don't think EMG can be done with leg moving nor would it likely be helpful if it were.

If your pain is only on walking and relieved by rest may need to consider possibility it is a circulatory problem not nerve problem. Has ankle brachial index been calculated and Doppler (vascular ultrasound) been done? If not -- and if the pain is on movement/exertion and relueved by rest -- I suggest you see a vascular specialist.

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Correct: peroneal.

slight jerking of the knee in sleep."wandering" painful sensitivity. Meaning never at the same time= quadricep, then not connected the whole knee hurt while resting on the bed. Then small toe. still sounds more like a neurological problem, doesn't it? 

If you believe it to be neurological then visit Dr. Thanin at Bangkok Christian. Tues and Thursday evening outpatients. 

Perineal. Also known as the ‘taint.


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