Ice Bucket Challenge inspiration Pete Frates dead at 34

 

FILE PHOTO: Liberal leader Justin Trudeau (R) dumps a bucket of ice water onto Liberal MP Sean Casey for the ALS ice bucket challenge during a break in the Federal Liberal summer caucus meetings in Edmonton August 19, 2014. REUTERS/Dan Riedlhube

 

(Reuters) - Pete Frates, whose battle with ALS inspired the Ice Bucket Challenge that raised millions for research, died on Monday at age 34 after a seven-year battle with the disease, Boston College said.

 

The former BC baseball captain, died at his home in Beverly, Massachusetts. He had been diagnosed with the neurodegenerative disease, which is also known as Lou Gehrig's disease, in 2012 at age 27.

 

The Ice Bucket Challenge took place during the summer of 2014, when people around the world posted videos and photos of themselves dumping buckets of ice water on their heads and challenging others to do the same while urging donations for ALS research.

 

It raised more than $220 million, the ALS Association reported. In 2017, the U.S. Food and Drug Administration announced it approved a drug that slows the effects of ALS.

 

Frates helped draw attention to the challenge through celebrity support from New England Patriots star Tom Brady, soon-to-become Canadian Prime Minister Justin Trudeau, former U.S. President George W. Bush, Bill Gates, Lady Gaga and others.

 

It was part of his long-time ALS advocacy, which he said inspired him to not just survive but thrive after being diagnosed with the deadly disease.

 

"(It) give me another reason to get out of bed every day," Frates told the Boston College newspaper, The Heights, roughly a year after his diagnosis.

 

"Being part of something bigger than yourself is one of the best things you can do," Frates said.

 

(Reporting by Barbara Goldberg in New York; Editing by Chris Reese and Marguerita Choy)

 

-- © Copyright Reuters 2019-12-10

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My younger brother got to feeling bad earlier this year.  It got serious in July.  He was finally diagnosed with ALS in October.  He died last night, aged 61.  Rough stuff. 

18 minutes ago, Damrongsak said:

My younger brother got to feeling bad earlier this year.  It got serious in July.  He was finally diagnosed with ALS in October.  He died last night, aged 61.  Rough stuff. 

My deepest sympathies on your loss.  

 

1 minute ago, Scott said:

My deepest sympathies on your loss.  

 

Thank you.  I had to tell my 91 year old Mother this morning.  It went better than expected.