I  have the medical condition myasthenia gravis and I was wondering if there are any other people on this forum with this condition who would like to share their experiences of suffering from it.

52 minutes ago, lelapin said:

I  have the medical condition myasthenia gravis and I was wondering if there are any other people on this forum with this condition who would like to share their experiences of suffering from it.

I'm sorry to hear about your health issues.

I wish you'll find some here on AN or FB with the same kind of problems.

All the best to you🙏

 

Am I right that you're NOT looking for treatment advices or locations for treatment??

I have been given medication which is effective but I am  interested as to the side effects others who  take it might be experiencing.

Not sure if you've researched on it but this is one link from a good source.................https://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/symptoms-causes/syc-20352036

Another two.....https://www.sciencedirect.com/science/article/pii/S0960896622006526 for medicine side effects................https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-019-1573-2

Suggest you try this online forum

 

https://myasthenia-gravis.com/forums

There's also a Facebook group.

 

https://www.facebook.com/groups/MGSupportGroup/?ref=share&mibextid=NSMWBT

I have MG. My earliest symptom was inability to open my eyes on waking. I needed to use my fingers. This then led to a droopy left eyelid. Eventually I became unable to swallow and had great difficulty breathing and speaking and was hospitalized.  My condition has been stabilised with immunosuppressants and steroids. The neurologists at the Queen Sirikit and SriRacha hospitals are excellent. I live a relatively normal life. 

Best wishes to you both @lelapin & @NorK

5 hours ago, NorK said:

I have MG. My earliest symptom was inability to open my eyes on waking. I needed to use my fingers. This then led to a droopy left eyelid. Eventually I became unable to swallow and had great difficulty breathing and speaking and was hospitalized.  My condition has been stabilised with immunosuppressants and steroids. The neurologists at the Queen Sirikit and SriRacha hospitals are excellent. I live a relatively normal life. 

Have you joined any relevant online forums. My condition seems to vary so much from day to day. Some days a little tired but other days I feel exhausted for most of the day. Usually things improve around late afternoon. The medicine I received from Pyathai Hosp have greatly improved things.

On 10/19/2025 at 1:40 PM, Bacon1 said:

There's also a Facebook group.

 

https://www.facebook.com/groups/MGSupportGroup/?ref=share&mibextid=NSMWBT

Just joined the group. The quantity and quality of posts on there is amazing