Hapatite C, what hospital?

[mogandave]

Yes, we can be very lucky. Thank you! Also we are very glad for all your guys here in TV. That help and support is priceless! You know who you are:-)
 
Yes, it as a shame that everything is about money. One should think when it is about health it should not be that extreme! OK, I understand that companies that comes out with new medicines want there research money back and also profit. But this is ridiculous and shameless. Not only this treatment. Others too I have read.
 
We hope that the medicine will help. There is always the small possibility that it not help. I am optimistic but cautious. We cross our fingers! But maybe then if it not works, should it be an option to take the medicine 3 more months? For a second chance? I have thought about that outcome too.
Under all circumstances I will keep you at TV updated.

Or a different med

[Captor]

Yes, or a different med. I have understood that this geno type 6 not is the most easy one to get rid off.

We have a good feeling about this doctor at Rajawithi. He seems to be very competent and also human and have high moral. So we are in good hands I believe.

If someone want he´s name I can send that in a private message. Maybe you want to to consult him as well. Just let me know.

Edited January 10, 2019 by Captor

[Sheryl]

No problem naming him on he thread since it is in a positive context.

[Captor]

Maybe it can be problem for him since he, when working at the private hospital, in the beginning of this topic, suggested us go to the government hospital instead for saving money. Sure it is a long shot but who knows...

 

[Captor]

Hi, here comes a short update,

During the visit at Rajawithi today my girlfriend ( I did not participate this time) got a new prescription and pills for 2 x 28 more days. Today during a blood sample the doctor confirmed that the medicine is helping for sure. My girlfriend asked for the virus load but that was not to be seen in that blood test they took today. I don´t know how he could judge that the medicine really helps if not check the virus load. Maybe there is some other marker in the blood where he can see that? The virus load will be tested when the whole course is finished.

 

Also they did not make a new Fibro scan or Ultra sound. But he said that the liver is in better shape now after the first 28 days. And he was positive that it will recover in full during the next phase of the course. Can he see that in the blood too?

Anyway, it was all positive news for us!

My girlfriend also asked if a farang comes in to the hospital and need the same treatment, if that will be at that same price like a Thai citizen that is not using the 30-bath scheme? On that the doctor answered yes.

[Sheryl]

Hi, here comes a short update,
During the visit at Rajawithi today my girlfriend ( I did not participate this time) got a new prescription and pills for 2 x 28 more days. Today during a blood sample the doctor confirmed that the medicine is helping for sure. My girlfriend asked for the virus load but that was not to be seen in that blood test they took today. I don´t know how he could judge that the medicine really helps if not check the virus load. Maybe there is some other marker in the blood where he can see that? The virus load will be tested when the whole course is finished.
 
Also they did not make a new Fibro scan or Ultra sound. But he said that the liver is in better shape now after the first 28 days. And he was positive that it will recover in full during the next phase of the course. Can he see that in the blood too?
Anyway, it was all positive news for us!
My girlfriend also asked if a farang comes in to the hospital and need the same treatment, if that will be at that same price like a Thai citizen that is not using the 30-bath scheme? On that the doctor answered yes.

He is likely basing this on the liver enzymes (ALT/AST), a simple inexpensive blood test which shows overall liver function.

Sent from my SM-J701F using Thailand Forum - Thaivisa mobile app

[Captor]

OK, he probably wanted to keep the costs down for us. I guess the virus load in not so important at this moment. Maybe it will be after the whole medicine cure. Thank you very much.

[Captor]

Here comes a new update about girlfriends Hepatite C.

Now after finishing the course by 3 x 28 pills the doctor says there is nothing to worry about. That the virus is gone or not detectable.

However, he want to check the blood again after 6 months. And he says better not donate blood anymore because some might get infected!? So that makes us wonder, is she free from the virus or not?

I attach the blood result in case someone know what that means?

 

Thanks

[Dumbastheycome]

19 minutes ago, Captor said:

Here comes a new update about girlfriends Hepatite C.

Now after finishing the course by 3 x 28 pills the doctor says there is nothing to worry about. That the virus is gone or not detectable.

However, he want to check the blood again after 6 months. And he says better not donate blood anymore because some might get infected!? So that makes us wonder, is she free from the virus or not?

I attach the blood result in case someone know what that means?

 

Thanks

Not wanting to step on toes  but  the  Doctor  is  correct about  follow  up tests. Undetectable  means  exactly that. So  follow  up  checks  are  advisable . 

Nice  to  have  witnessed  good  current  outcome  and  good  advice  on the  forum. 

[mogandave]

I think there may be some confusion about donating blood.

She will always test positive, regardless of her viral load, so the blood she donates would be useless.

As I understand it, you are not at risk of being infected by her, nor is anyone else.

[mogandave]

I get follow-ups every six months as well.

[mikey88]

It needs to be treated obviously.

Any liver specialist can order the tests.

You need a PCR to determine if the virus is present and you need to determine which Genotype of the virus is present.

Then you just need the medication.

The modern (Sofosbuvir etc) tablets are relatively simple and side effect free.

But reasonably expensive. 

After the 3 to 6 months of daily dosing you need another PCR to determine if the virus is detectable..

Then follow up 6 monthly to see if the virus returns.

[mogandave]

It needs to be treated obviously.
Any liver specialist can order the tests.
You need a PCR to determine if the virus is present and you need to determine which Genotype of the virus is present.
Then you just need the medication.
The modern (Sofosbuvir etc) tablets are relatively simple and side effect free.
But reasonably expensive. 
After the 3 to 6 months of daily dosing you need another PCR to determine if the virus is detectable..
Then follow up 6 monthly to see if the virus returns.

She’s been through all of that, and the virus is currently undetectable.

[Captor]

Hi all and thanks for the input,

 

Yes, Mikey88, she has dome all that already as Mogandave says. You can read about it in the tread if you are interested more. I just wanted to hear with you guys about the recently blood tests. If everything looks correct. And that seems to be the case, thanks Mogandave.

Also I wanted to pay the courtesy and inform you guys the outcome of all this. I read a lot posts here were people help but I never find the outcomes of how it finally went. I think that is only half the information.

Who knows if what was suggested by members here all was wrong if not hear the outcome!?

 

Anyway, we will probably get the same information from the doctor that she must test every 6 months I guess. No problem with that at all.

OK, so the virus will still be there but undetectable. And not dangerous for others. And for herself (liver)?

[mogandave]

As I understand it, it takes a long time and a high viral load to cause any real damage.

[Captor]

OK, understood. Thanks Mogandave.

[Captor]

An update... Hi, the viralload has gone up again 3 months after the Ledvir course. It is about 240 000 now. So the medicine did not help all the way. The viral load is coming back. Maybe she should have taken it for 6 months instead? Or taking a new course? Or together with Ribavirin?

The doctor at the government hospital said that there will come a new medicine again! He said that it is already available in many countries but not in Thailand yet. But maybe next time when she visit again in November. He suggested to wait for that instead of taking the same medicine again. There is no problem with the liver and everything else looks normal. Except the viral load which was a big surprise he said. Normally Ledvir helps. This is the first time he seen it not helping.

 

Does anyone know about the new medicine he is talking about? Genotype is 6n. I have done some googling and found Sofosbuvir (Sovaldi), velpatasvir and voxilaprevir in a combo pill. Can it be that? Also something named Daclatasvir seems to be new.

I guess this one will be more expensive if it is very new. Maybe much cheaper buying from India if can find out which one it is.

 

[Sheryl]

12 weeks is he normal duration for treatment with Ledvir. Treatment failures do sometimes happen.

 

The recommended treatment for people with genotype 6 and prior treatment wiht Ledvir or similar is Sofosbuvir/Velpatasvir/Voxilaprevir

[Captor]

Hi Sheryl, thank you very much. That was prior to Ledvir. Any idea of any new medicine that came after?

But OK he maybe not mean a new medicine in general. Maybe he meant new for Thailand. I have read about Ledvir sometimes is taken together with Ribavirin. Maybe that is what she should have? Or Declatasvir? I read that Genotype 6 can be treated with any of the treatments for all the other genotypes.. So then there are still many options.

[Sheryl]

I don't follow what you mean by "that was prior to ledvir".

 

The 3 drug combo I mention is the recommended treatment for someone who has genotype 6 and treatment failure on Ledvir.

 

Sent from my SM-J701F using Thailand Forum - Thaivisa mobile app

 

 

 

 

 

 

[Captor]

9 hours ago, Sheryl said:

I don't follow what you mean by "that was prior to ledvir".

 

The 3 drug combo I mention is the recommended treatment for someone who has genotype 6 and treatment failure on Ledvir.

 

Sent from my SM-J701F using Thailand Forum - Thaivisa mobile app

 

 

 

 

 

 

You wrote "prior with Ledvir". So I thought the 3 drug combo was used before Ledvir came into the picture. Sorry for misunderstanding.

OK, so that combo is being used when Ledvir failed. So then that is the medicine he is talking about. We have to wait for the medicine to be available in Thailand. Thanks.