Myalgic Encephalomyelitis / Chronic Fatigue Syndrome aka ME - CFS = Help needed

[Speedo1968]

One of my daughters in the UK who will be 35 this month has just been told she has ME.

 

Since first seeing her GP it has taken 6 months to get an initial test result, it is going to take a further 3 months

to find out what form of ME she has.     

As ME can change rapidly from one form to another, having to deal with an appalling National Health System does not help anxiety levels.

 

I am seeking any advice or first hand knowledge of ME from any source.   

If from the UK that would be very useful as it allows for the long delays in getting feed back from the doctors.

My daughter is still waiting for the results of a renal MRA scan after 6 weeks, the hospital says they have a backlog.

 

She is open to any form therapy that may help, e.g. alternative.   At the moment she is looking at CBD oil and yoga.

 

[Sheryl]

• ME Association
  • 7 Apollo Office Court
  • Radclive Road
  • Bucks, MK18 4DF United Kingdom
  • Phone: (128) 081-8964
  • Email: [email protected]
  • Website: http://www.meassociation.org.uk

[faraday]

Sorry to hear about your daughter.

 

Here's some Patient Information, which I hope is of some use.

https://patient.info/forums/discuss/browse/chronic-fatigue-syndrome-389

[Speedo1968]

1 hour ago, faraday said:

Sorry to hear about your daughter.

 

Here's some Patient Information, which I hope is of some use.

https://patient.info/forums/discuss/browse/chronic-fatigue-syndrome-389

Many thanks faraday.

I read through some of the postings, interesting readings especially about CBD, have forwarded on to my daughter.

[Speedo1968]

1 hour ago, faraday said:

Sorry to hear about your daughter.

 

Here's some Patient Information, which I hope is of some use.

https://patient.info/forums/discuss/browse/chronic-fatigue-syndrome-389

 

1 hour ago, Sheryl said:

• ME Association
  • 7 Apollo Office Court
  • Radclive Road
  • Bucks, MK18 4DF United Kingdom
  • Phone: (128) 081-8964
  • Email: [email protected]
  • Website: http://www.meassociation.org.uk

Many thanks Sheryl, have forwarded on to my daughter and will through the web site myself today.