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Moyamoya Disease

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I have just brought my Thai wife home from the Critical Care Hospital and she was

diagnosed as having "moyamoya disease". It is an artery-disease predominently

in those of Asian descent. Anyone heard of it? It exhibits stroke-like symptoms and

can be fatal. A cerebral-bleed is most often the cause of death. It is literally shrinking of the carotid-artery in the brain.

We are scheduled to go to the University Medical Center at the U of Minnesota on

June 1st for her to have an assessment to see if she is a candidate for an arterial-

bypass surgery. This seems to be the only method of help for this malady.

Anyone else out there either have experience with this or even hear of it?

If you google 'moyamoya support group' you will find many sites that might help you locate someone in Thailand with family experience of this disease.

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