Moyamoya Disease

[luangtom]

I have just brought my Thai wife home from the Critical Care Hospital and she was

diagnosed as having "moyamoya disease". It is an artery-disease predominently

in those of Asian descent. Anyone heard of it? It exhibits stroke-like symptoms and

can be fatal. A cerebral-bleed is most often the cause of death. It is literally shrinking of the carotid-artery in the brain.

We are scheduled to go to the University Medical Center at the U of Minnesota on

June 1st for her to have an assessment to see if she is a candidate for an arterial-

bypass surgery. This seems to be the only method of help for this malady.

Anyone else out there either have experience with this or even hear of it?

[bina]

googled:

http://www.ninds.nih.gov/disorders/moyamoya/moyamoya.htm

[luangtom]

googled:

http://www.ninds.nih.gov/disorders/moyamoya/moyamoya.htm

<{POST_SNAPBACK}>

I thank you for the info input. I have a number of sites that speak of MOYAMOYA.

I was just wondering if anyone in the LOS had experience with a family-member

having this disease and who or where in LOS it was treated.

[chownah]

If you google 'moyamoya support group' you will find many sites that might help you locate someone in Thailand with family experience of this disease.