ALS (Motor Neurone Disease) support in Thailand

[Crash999]

Does anyone know if there is any expertise in Thailand when it comes to monitoring and treatment of ALS? It cannot be cured but in some countries there are clinics that provide support in terms of monitoring progression, providing what drugs are available, equipment, and so on. 
 

Also I can’t seem to find any sort of groups for people with the disease. 
 

Bumrungrad has some neurologists that can do basic diagnostics but their experience is limited. 
 

Thank you! 

[Sheryl]

Thailand is not much for disrase support groups and certainly would not havecone gor domething this uncommon. (ALS prevs)alence here is lower than in the West).

 

 

This US-trained doctor has some exoerience with it:

 

 

https://www.medparkhospital.com/en-US/doctors/dr-narupat-suanprasert

[Crash999]

Thank you Sheryl for that referral. I’ll check it out. 
 

Both Singapore and Hong Kong have patient groups and Singapore has a dedicated ALS clinic. With the much larger population in Thailand I was hoping there would be something available locally. 

[jts-khorat]

There was a very long post by a sufferer on the phuket-info.com forum, recording his journey in great detail from being diagnosed through all stages of the illness.

 

The forum is defunct for some years now, but I am sure, if you could unearth these posts, they might contain helpful information for you.

[Crash999]

Thank you so much. I did manage to find a few pages from Rex. I will take a read through. 
 

Appreciate the reply.